[SRG] This book is dedicated to my wife, Anita, and two children, Collin and Brittany, who give me the greatest life imaginable The long hours it took to finish this book would never have been possible without the support of my loving wife Her constant encouragement, understanding, and love provided me with the strength I needed to accomplish my goals I thank her with all my heart I also dedicate this book to my parents, who have given me so much support and guidance throughout my life Their words of encouragement and guidance have made my professional journey a very rewarding and successful experience —G G This book is dedicated to my wife, Jackie, and my two children, Jacqueline and Scott, who provide me with the love and purpose for undertaking projects that will hopefully enhance the lives of others The fact that they are such a loving presence in my life is the reason why my life has been blessed I also dedicate this book to my parents, who provided me with the secure and loving foundation from which to grow; my sister Carol, who has always made me smile and laugh; and my brother-in-law George, who has always been a very positive guiding light in my professional journey —R P Copyright © 2006 by Corwin Press First Carrel Books edition 2015 All rights reserved No part of this book may be reproduced in any manner without the express written consent of the publisher, except in the case of brief excerpts in critical reviews or articles All inquiries should be addressed to Carrel Books, 307 West 36th Street, 11th Floor, New York, NY 10018 Carrel Books may be purchased in bulk at special discounts for sales promotion, corporate gifts, fund-raising, or educational purposes Special editions can also be created to specifications For details, contact the Special Sales Department, Carrel Books, 307 West 36th Street, 11th Floor, New York, NY 10018 or carrelbooks@skyhorsepublishing.com Carrel Books® is a registered trademark of Skyhorse Publishing, Inc.®, a Delaware corporation Visit our website at www.carrelbooks.com 10 Proudly sourced and uploaded by [StormRG] Kickass Torrents | TPB | ExtraTorrent | h33t Library of Congress Cataloging-in-Publication Data is available on file ISBN: 978-1-63144-006-9 Ebook ISBN: 978-1-63144-013-7 Printed in the United States of America Contents Preface Acknowledgments About the Authors Part National Disability Resources Clearinghouses Disability Organizations Part National Toll-Free Numbers for National Organizations Concerned With Disability and Children’s Issues Part Disability Publishers Offering Books, Videos, and Journals on Specific Disabilities, Special Education, Parenting, and Other Disability and Special Needs Topics Part Disability-Related Resources of Agencies and Organizations in the United States That Address DisabilityRelated Issues, Listed by States About the Agencies and Organizations Alabama Alaska Arizona Arkansas California Colorado Connecticut Delaware District of Columbia Florida Georgia Guam Hawaii Idaho Illinois Indiana Iowa Kansas Kentucky Louisiana Maine Maryland Massachusetts Michigan Minnesota Mississippi Missouri Montana Nebraska Nevada New Hampshire New Jersey New Mexico New York North Carolina North Dakota Ohio Oklahoma Oregon Pennsylvania Puerto Rico Rhode Island South Carolina South Dakota Tennessee Texas Utah Vermont Virgin Islands Virginia Washington West Virginia Wisconsin Wyoming Part Additional Resources Bullying and Behavior Issues Individuals With Disabilities Education Improvement Act (IDEA) and Individualized Education Programs (IEPs) Including Students With Disabilities in State and District Assessments Learning Disabilities Teaching Strategies and Materials Summer Camps for Children With Disabilities 10 http://nationalserviceresources.org/resources/online_pubs/ #literacy • It’s a family thing www.barbarabushfoundation.com/ The Barbara Bush Foundation for Family Reading works to promote literacy within the family and to break the intergenerational cycle of illiteracy Literacy and Children With Disabilities • Ever tried accessible books? In addition to the Accessible Book Collection mentioned earlier under “Reading with Older Students,” there are a number of notable sources of materials specially designed for individuals with reading or physical disabilities that impede their use of print text Try: - the National Library Service for the Blind & Physically Handicapped at the Library of Congress at www.loc.gov/nls - Recording for the Blind and Dyslexic at www.rfbd.org - bookshare.org, a Web-based system supplying accessible books in digital formats designed for people with disabilities at www.bookshare.org • A ground-breaking center working on literacy and children with disabilities 1666 www.med.unc.edu/ahs/clds/ The Center for Literacy and Disabilities Studies (CLDS) promotes literacy learning and use for individuals of all ages with disabilities This site describes their ongoing literacy projects and connects you with upcoming events in your area • Need to know about Braille and literacy? www.afb.org/ Visit the American Foundation for the Blind and find an overview of literacy, Braille literacy resources for parents, resources for teachers of Braille, discussions of electronic books, a newsletter on Braille literacy, a Braille e-mail discussion group, and more • Looking for embossed Braille resources? www.bookshare.org Braille books originating from the bookshare.org’s digital Braille files can be ordered in embossed Braille form and mailed directly to you or as a gift • For children with learning disabilities The materials available on literacy for children with LD are a splendid resource for all of us The problem is—where to begin? Here is an obviously short list that will lead you into a universe of more - LDonline at: www.ldonline.org/ 1667 - National Center for Learning Disabilities (NCLD) at www.ld.org, and its generous sister-site at www.getreadytoread.org - the Learning Disabilities Association of America (LDA) at www.ldaamerica.org/ • For deaf and hard of hearing children ncam.wgbh.org/cornerstones Cornerstones: A New Approach to Literacy Development for Deaf and Hard of Hearing Children has a great tool for teachers of children who are deaf and hard of hearing: A Cornerstones teaching unit based on an episode of “Between the Lions,” the award-winning PBS literacy series for beginning readers Included are clear lesson plans as well as supportive material • For children with Down syndrome www.woodbinehouse.com Woodbine House makes available Teaching Reading to Children With Down Syndrome: A Guide for Parents and Teachers For more information about the book, its cost, and how to order, visit this Web site • For children with mental retardation www.cec.sped.org/bk/catalog2/autism.html 1668 This link connects you to the Council for Exceptional Children’s (CEC) catalog Scroll down until you reach the description of The Quest for Literacy: Curriculum and Instructional Procedures for Teaching Reading and Writing to Students with Mental Retardation Order this 80-page book online by calling CEC’s toll-free number, (888) 232-7733, or by e-mail at service@cec.sped.org Reading and English Language Learners • What works with students learning English as a second language? www.csos.jhu.edu/crespar/techReports/Report66.pdf Off the press in December 2003, Effective Reading Programs for English Language Learners: A Best-Evidence Synthesis is available from the Center for Research on the Education of Students Placed at Risk (CRESPAR) • What works with adults learning English? www.cal.org/ncle/readingbib/ Find out in Research on Reading Development of Adult English Language Learners: An Annotated Bibliography, available at this link from NCLE, the National Center for ESL Literacy Education Teaching Students With Rett Syndrome • Lots of education-related info and guidance on IRSA’s site 1669 www.rettsyndrome.org/main/toc-education.htm The International Rett Syndrome Association (IRSA) offers a lengthy table of contents on education issues that will take you to individual articles Find out about inclusion, accessing the general education curriculum, finding the right school placement, testing methods, and scads of info on how to design an IEP for a student with Rett’s • The importance of the IEP www.autism-society.org/site/PageServer?pagename=IEP The Individualized Education Program (IEP) is a written document that outlines a child’s education For students with autism, it’s a cornerstone of the educational services they will receive and needs to be carefully planned Parents and teachers alike will find this article on the IEP helpful • If you want to know more about special education, IEPs, and educational rights under the law, be sure to take a look at NICHCY’s materials http://www.parentcenterhub.org/ NICHCY publications are now available for free on their affiliate, CPIR’s Web site You can also call at (800) 695-0285 for copies or to talk over personal questions and concerns • IRSA also offers, for low cost, a book for parents, teachers, and therapists 1670 www.rettsyndrome.org/main/ understanding_rett_syndrome.htm Find out more about Understanding Rett Syndrome: A Practical Guide for Parents, Teachers and Therapists at the International Rett Syndrome Association (IRSA) The foreword of the book is written by Dr Andreas Rett, the discoverer of the syndrome Again, from the perspective that Rett Syndrome is a disorder on the autism spectrum, the following autism-related information may be useful to you • Educating Children Developmental Disorder With Autism and Pervasive www.autismweb.com/education.htm Courtesy of Autism Web • Educating Children With Autism www.nap.edu/catalog/10017.html The Committee on Educational Interventions for Children With Autism, National Research Council, offers Educating Students With Autism, which examines the scientific knowledge underlying educational practices, programs, and strategies for children with this disability Read the book online, order online, or call (888) 624-8373 • A special resource: The Professional Development in Autism Center 1671 http://depts.washington.edu/pdacent/ The Professional Development in Autism Center (PDA) provides training and support for school districts, families, and communities to ensure that students with ASD have access to high-quality, evidence-based educational services in their local school districts Visit online or call (206) 543-4011 Spanish Materials • El Síndrome de Rett, a fact sheet from NINDS, the National Institute of Neurological Disorders and Stroke www.ninds.nih.gov/health_and_medical/pubs/ el_sindrome_de_rett.htm • Translate IRSA’s site www.rettsyndrome.org/ On the top left menu of the International Rett Syndrome Association’s Web site, you’ll see a tab titled “Translate.” Babel Fish is used to render the site into Spanish, 150 words at a time! • For low cost, you can buy The Rett Syndrome Handbook in Spanish www.rettsyndrome.org/main/rett_syndrome_handbook.htm The Rett Syndrome Handbook is written by IRSA founder and President, Kathy Hunter, and covers all areas of Rett 1672 Syndrome you can think of It’s available in Spanish Find out more and order it online via this link • The Spanish version of When your child is diagnosed with an autism spectrum disorder www.iidc.indiana.edu/irca/fspanish.html Cuando su niño/niña es diagnosticado alguno de los desórdenes en la gama del autismo is the Spanish title of this publication from the Indiana Resource Center for Autism • Looking at the genetics of autism (in Spanish), including Rett’s www.exploringautism.org/spanish/autism/evaluation.htm • ¿Q es el Síndrome Rett?, from the Rett Syndrome Association of Argentina www.rett.com.ar/sindrome_rett.htm • Síndrome de Rett: Revisión y actualización deconceptos, from Venezuela http://ceril.cl/P41_s_rett.htm SUMMER CAMPS DISABILITIES FOR General 1673 CHILDREN WITH Camps 2005: A Directory of Camps and Summer Programs for Children and Youth With Special Needs and Disabilities in the Metro New York Area Resources for Children With Special Needs Publications/Department B 116 E 16th Street, 5th Floor New York, NY 10003 (212) 677-4650 E-mail: Info@resourcesnyc.org Web: www.resourcesnyc.org $33.00 including shipping and handling (available in English & Spanish) Easter Seals Camping and Recreation List Easter Seals-National Office 230 West Monroe Street, Suite 1800 Chicago, IL 60606 (800) 221-6827; (312) 726-6200 (Voice) (312) 726-4258 (TTY) E-mail: info@easterseals.com, or rgarza@easterseals.com 1674 Web: www.easterseals.com Free (some “camperships” are available) Guide to Summer Camps and Summer Schools (29th edition) Porter Sargent Publishers, Inc., c/o IDS 300 Bedford Street, Building B, Suite 213 Manchester, NH 03101 (800) 342-7470 E-mail: info@portersargent.com Web: www.portersargent.com $45.00 hard-cover; $27.00 soft-cover (plus shipping and handling) Guide to ACA Accredited Camps 2004 American Camping Association (ACA), Inc 5000 State Road 67 North Martinsville, IN 46151-7902 (800) 428-2267; (765) 342-8456 E-mail: bookstore@acacamps.org Web: www.acacamps.org 1675 $12.95 (includes shipping and handling) (You can search ACA’s database of camps online free of charge.) National Camp Association, Inc 610 Fifth Avenue P.O Box 5371 New York, NY 10185 (800) 966-CAMP (2267); (212) 645-0653 E-mail: info@summercamp.org Web: www.summercamp.org (CampQuest, an online camp selection guide, is available on the NCA Web site.) Summer Opportunities for Kids & Teenagers Peterson’s Princeton Pike Corporate Center 2000 Lenox Drive Lawrenceville, NJ 08648 (800) 338-3282 1676 E-mail: info@petersons.com Web: http://e-catalog.thomsonlearning.com/326 $29.95 (plus shipping and handling) Disability-specific Camp List for Children With Cancer The Candlelighters Childhood Cancer Foundation National Office P.O Box 498 Kensington, MD 20895-0498 (301) 962-3520; (800) 366-2223 E-mail: info@candlelighters.org Web: www.candlelighters.org/supportcamps.stm Camps for Children With Spina Bifida Spina Bifida Association of America 4590 MacArthur Boulevard, NW, Suite 250 Washington, DC 20007-4226 (800) 621-3141; (202) 944-3285 1677 E-mail: sbaa@sbaa.org Web: www.sbaa.org Call for a state-by-state listing Web Sites • Association of Independent Camps: Summer Camp Directory & Resource www.independentcamps.com/intercamp • Brave Kids: Camps and Resources for Children With Chronic, Life-threatening Illnesses or Disabilities www.bravekids.org • Camp Channel: Bringing Summer Camps to the Internet www.campchannel.com/docs/campsearch.html • The CampPage Guide to Summer Camps www.camppage.com • The Camp & Conference Homepage www.camping.org • Camps for Children With Diabetes www.childrenwithdiabetes.com/camps 1678 • CampResource.com: Special Needs Camps www.campresource.com/camps/spec_needs_camps.cfm • Camp Search: The Search Engine for Camps www.campsearch.com/ • Children’s Hemiplegia and Stroke Association (CHASA) www.chasa.org/summercamps.htm • Children’s Oncology Camping Association www.coca-intl.org • Diabetes Camping Directory—U.S Camps Association: Diabetes Camp www.diabetescamps.org/uscamps.html • Grown-Up Camps www.grownupcamps.com • Kids’ Camps www.kidscamps.com • National Center on Physical Activity & Disability (NCPAD) Summer Camps Fact Sheet www.ncpad.org/fun/fact_sheet.php?sheet=88&view=all 1679 • Special Needs Camps www.mysummercamps.com/camps/Special_Needs_Camps/ index.html • Summer Camps for Amputees and Children With Limb Differences www.amputee-coalition.org/fact_sheets/Kidscamps.html • Summer Camps for Children Who Are Deaf or Hard of Hearing http://clerccenter.gallaudet.edu/InfoToGo/142.html • Summer Camps for Kids With Learning and Attention Problems www.schwablearning.org/camp/index.asp • Summer Camp Search http://summercamps.com/cgi-bin/summercamps/search.cgi • Thomson & Peterson’s Listing of Special Needs Summer Programs www.petersons.com/summerop/select/t004se.html 1680 ... currently holds the office of Executive Director of the National Association of Special Education Teachers (NASET), Executive Director of The American Academy of Special Education Professionals (AASEP),... from the International College of Professional Psychology, and Board Certification in Special Education from the American Academy of Special Education Professionals Dr Giuliani is a member of the. .. and the Council for Exceptional Children Dr Giuliani is the Executive Director of The National Association of Special Education Teachers, Executive Director of the American Academy of Special Education