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Jackson AC, et al Familial impact and coping with child heart disease: a systematic review Pediatr Cardiol 2015;36(4):695–712 This review article summarizes key contributions to the understanding of how families react and cope with having a child with congenital heart disease Connor JA, et al The meaning of cost for families of children with congenital heart disease J Pediatr Health Care 2010;24(5):318–325 In this study, qualitative interviews with families identified the financial, emotional, and family burden for those affected by congenital heart disease Oster ME, et al Academic outcomes in children with congenital heart defects: a population-based cohort study Circ Cardiovasc Qual Outcomes 2017;10(2) Riehle-Colarusso T, et al Congenital heart defects and receipt of special education services Pediatrics 2015;136(3):496–504 These two studies examine the association of congenital heart disease with educational outcomes, namely the achievement on standardized tests and the need for special education services References Garson A Jr, et al The cost of congenital heart disease in children and adults A model for multicenter assessment of price and practice variation Arch Pediatr Adolesc Med 1994;148(10):1039–1045 Porter ME What is value in health care? N Engl J Med 2010;363(26):2477–2481 Arth AC, et al Inpatient hospitalization costs associated with birth defects among persons of all ages - United States, 2013 MMWR Morb Mortal Wkly Rep 2017;66(2):41–46 Simeone RM, et al Pediatric inpatient hospital resource use for congenital heart defects Birth Defects Res A Clin Mol Teratol 2014;100(12):934–943 Lawley CM, et al Mortality, rehospitalizations and costs in children undergoing a cardiac procedure in their first year of life in New South Wales, Australia Int J Cardiol 2017 Smith AH, Gay JC, Patel NR Trends in resource utilization associated with the inpatient treatment of neonatal congenital heart disease Congenit Heart Dis 2014;9(2):96–105 Mackie AS, et al Cost of congenital heart disease hospitalizations in Canada: a populationbased study Can J Cardiol 2017 Marelli AJ, et al Lifetime prevalence of congenital heart disease in the general population from 2000 to 2010 Circulation 2014;130(9):749–756 Gilboa SM, et al Congenital heart defects in the United States: estimating the magnitude of the affected population in 2010 Circulation 2016;134(2):101–109 10 Nasr VG, et al Outcomes and costs of cardiac surgery in adults with congenital heart disease Pediatr Cardiol 2017 11 Lui GK, et al Diagnosis and management of noncardiac complications in adults with congenital heart disease: a scientific statement from the American Heart Association Circulation 2017;136(20):e348–e392 12 Bergersen L, et al A method to account for variation in congenital heart surgery charges Ann Thorac Surg 2015;99(3):939–946 13 Connor JA, Gauvreau K, Jenkins KJ Factors associated with increased resource utilization for congenital heart disease Pediatrics 2005;116(3):689–695 14 Tuomela KE, et al Resource utilization associated with extracardiac co-morbid ... associated with birth defects among persons of all ages - United States, 2013 MMWR Morb Mortal Wkly Rep 2017;66(2):41–46 Simeone RM, et al Pediatric inpatient hospital resource use for congenital heart defects Birth Defects Res A Clin Mol Teratol... Connor JA, Gauvreau K, Jenkins KJ Factors associated with increased resource utilization for congenital heart disease Pediatrics 2005;116(3):689–695 14 Tuomela KE, et al Resource utilization associated with extracardiac co-morbid
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