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Quick, simple measures of family relationships for use in clinical practice and research. A Systematic Review.

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Tiêu đề Quick, Simple Measures Of Family Relationships For Use In Clinical Practice And Research
Tác giả Pritchett, Rachel, Kemp, Jeremy, Wilson, Philip, Minnis, Helen, Bryce, Graham, Gillberg, Christopher
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Quick, simple measures of family relationships for use in clinical practice and research A Systematic Review Pritchett, Rachel; Kemp, Jeremy; Wilson, Philip; Minnis, Helen; Bryce, Graham; Gillberg, Christopher ABSTRACT Background: Family functioning has been implicated in the onset of child and adult psychopathology Various measures exist for assessing constructs in the areas of parent-child relationships, parental practices and discipline, parental beliefs, marital quality, global family functioning and situation specific measures Objectives: To identify systematically all questionnaire measures of family functioning appropriate for use in primary care and research Methods: A systematic literature review was conducted, following PRISMA guidelines and searching 14 bibliographic databases using pre-determined filters, to identify family functioning measures suitable for use in families with children from zero to three years old Results: One hundred and seven measures of family functioning were reported and tabulated and the most commonly used measures were identified Conclusions: There are numerous measures available demonstrating characteristics which make them suitable for continued use Future research is needed to examine the more holistic measurement of family functioning using integration of multi-informant data Keywords: Systematic Review; Family Functioning; questionnaires INTRODUCTION Understanding what is going on in the family is a challenge in clinical practice: clinicians in primary care, paediatrics and psychiatry wish to understand the impact of family functioning on development and require robust standardised measures that can be administered effectively in busy clinical settings The importance of family functioning in the development of child and adult psychopathology is well established (1;2) Less clearly understood are the specific family processes implicated and the patterns of cause, correlation and interaction that lead to specific disorders (3) These processes need to be understood over time and in depth Cross-sectional research generally fails to disentangle causes from consequences but longitudinal population-based research offers the potential to elucidate these pathways (4) This type of research relies on well-validated measures of family functioning that can be administered on a large-scale, in a cost-efficient manner and be suitable for use with families with young children A number of self-report instruments fulfil these criteria and form the focus for this review Previous examination of the literature in this area has focussed on frequently-cited measures without systematically examining all available measures (5) This present review extends these findings by commenting on recent validation work carried out on the previously reviewed measures We have also widened the literature search to include all the self-report measures of family functioning which have been developed, producing an up to date, inclusive, systematic review of self report measures of family functioning There are challenges facing those who use self-report family functioning measures(5) These include the question of how effective family functioning measures are at examining the family level, rather than the individual level, and whether averaging individual family members’ scores to gain an overall score is valid There is also a broader question of whether people give accurate or simply socially desirable answers in self report questionnaires In addition when examining self-report measures for families with preschool children, it is clear than the measures will be scored solely from the parent’s point of view Further issues that have been found to affect self-report measures include gender, socioeconomic status and ethnic background Tutty (5) discusses these considerations in detail What measures of family functioning measure? No single measure, or group of measures, can hope to capture the complexity of family functioning completely Indeed, measures are often developed with a particular purpose in mind, for example to assess the extent to which a particular familial factor is correlated with a particular disorder, such as harsh parental discipline with conduct disorder Other measures have been developed within a clinical or therapeutic context, as is the case with many of the global measures of family functioning (e.g the Family Assessment Device (FAD); (6) Measures of marital quality have been developed for both clinical and research use Some measures aim to examine family functioning as a whole, while others look at specific areas of family functioning For the purposes of this review measures of family functioning have been organised into six sections, described below Parent-child relationships Parental practices and discipline Parental beliefs Marital quality Global family functioning and Situation-specific measures Family functioning and mental health In a survey of child mental health in the UK, prevalence of mental disorders was 18% in families with poor functioning (as measured by the General Functioning Scale of the McMaster Family Assessment Device – FAD; (6) as opposed to 7% in families with healthy levels of family functioning (7) In the Ontario study of child mental health, poor scores on the same scale predicted subsequent adjustment problems and occurrence of suicidal behaviour (8) Families of boys with a mood or anxiety disorder, boys with ADHD and control boys were compared using the FAD (9) While families of boys with psychopathology had poorer levels of family functioning there was no difference in profile between the mood disordered and the ADHD groups In contrast, Cunningham et al found no significant difference in family functioning (FAD) between ADHD and non-ADHD families (10) The evidence linking family functioning to mental health and development problems emphasises the need fully to understand different measures of family functioning In this systematic review, we present a broad overview of published measures of family functioning METHOD A literature search of internet-based bibliographic databases was completed covering the area of interest, family functioning Following a preliminary search by one of the authors (JK), a more comprehensive search was carried out independently by another author (RP) using the guidelines on the preferred method for reporting items for systematic reviews: the PRISMA statement (11) The search was conducted using the following databases: PsychLIT/PsychInfo, BNI, CINAHL, Ovid EBM databases collection, EMBASE, ERIC, Health and Psychosocial Instruments, MEDLINE, WEB OF SCIENCE, 10 International Bibliography of the Social Service, 11 PsycARTICLES, 12 Psychology and Behavioural Sciences Collection, 13 socINDEX with Full Text, 14 Health Source: Nursing/Academic Edition The two searches were cross checked and all the references identified in the initial search were found in the more comprehensive search All searches were limited to references published in English between 1966 and February 2009 Titles and abstracts were checked by a single reviewer (RP) who sought advice regarding inclusion and exclusion from other authors in case of doubt References were then excluded on the basis of the title and abstract if they did not meet the following criteria: Human study population; Study measures include tools that a) assess area of interest, b) are self-report measures and thus are potentially suitable for use in a large scale study c) are suitable for use with members of families with a child at or below the age of three (can be deemed suitable by author, even if not validated on this age group); Published in a peer-reviewed journal, book or monograph Search terms were modified iteratively to ensure inclusion of key papers identified a priori by experts in the field., Terms used in the final search were: exp Family Relations/ Family or families) adj3 (relations* or dynamic* or conflict* or function* or dysfunction*) (parent* or mother* or maternal or father* or paternal) adj3 (disciplin* or permissive* or role* or influen*) (parental or parenting or child rearing) adj (style* or attitude* or expectation* or skill* or behavio?r* or role*) (Sibling* or ((father or paternal or mother or maternal) adj (child))) adj relations* self report.mp [mp=title, original title, abstract, name of substance word, subject heading word] child, preschool/ or exp infant/ (infant* or baby or babies or toddler* or pre-school child* or (child* adj under adj3 three)).mp [mp=title, original title, abstract, name of substance word, subject heading word] These eight searches were conducted individually and then combined (1or2or3or4or5) and and (7or8) (See Figure 1) Additional references were sought where appropriate using a secondary search of the reference lists from key papers Experts in the field were consulted to ensure that we had not omitted any key papers Figure here The papers were then grouped into six themes, based on the aspect of family functioning that they were each measuring The sections were created in a way to organise the large number of measures into a reasonable number of categories to aid ease of finding appropriate measures for future research All the measures met basic criteria for reliability and validity, unless otherwise stated These criteria required evidence of test-retest or inter-rater reliability and/or basic validation data, including comparison with existing “gold standard” instruments, factor analytic findings that fit with previously developed theory or other instruments, or prediction of meaningful correlates or outcomes The main references will need to be referred to for individual psychometric properties of the measures RESULTS The tables below display all the identified measures of family functioning There is one table for each of the six sections: Parent-child relationships Parental practices and discipline Parental beliefs Marital quality Global family functioning and Situation-specific measures The measures are listed in alphabetical order in each table It should be noted that some measures could be included in more than one table: where this was the case they were placed in the table deemed most suitable We have highlighted the most commonly used measures in each table: these were also well validated measures, normed in reasonably large populations and generally short and easy to use One such example is the Parenting Stress Index (PSI) (see below), normed on over 2,500 parents and its short form contains 36 items tapping into key aspects of parenting stress including parental distress, difficult child characteristics, and dysfunctional parent-child interaction Table displays the parent-child relationship measures These measures aim to assess patterns of attachment and other aspects of the parent-child relationship which can be conceptualised by examining communication, nurturing and a sense of parental pleasure in interaction Table1 here Of the parent-child relationship measures, the most commonly used measures were the Parenting Stress Index (PSI) and the Child Abuse Potential Inventory (CAPI) Table displays the parental practices and discipline measures These measures assess interactional patterns of behaviours including harsh and inconsistent discipline Table here Of the parental practices and discipline measures, the most commonly used were the Parenting Scale (PS), the Parenting Daily Hassles Scale (PDH) and the Conflict Tactics Scale (CTSPC) Table displays the parental belief measures These measures assess the way in which a person thinks about being a parent and their beliefs about their particular skills Table here Of the parental belief measures, the most commonly used was the Parenting Sense of Competence Scale (PSOC) Table displays the marital quality measures These measures assess marital conflict, quality and perception of marital problems Table here Of the marital quality measures, the most commonly used was the Dyadic Adjustment Scale (DAS) Table displays the Global Family Functioning Measures These measures conceptualise the family as a system which needs to be examined as a whole Table here Of the global family functioning measures, the most commonly used were the Impact on Family Scale, the Family Adaptability and Cohesion Scale (FACES), the Family Assessment Device (FAD) and the Family Assessment Measure (FAM) Table displays the situation specific measures These measures assess how a family functions in a specific situation when a child suffers problems Table here Of the situation specific measures, none had been repeatedly used, and should instead be chosen depending on the specific situation present DISCUSSION This review demonstrates the vast range of available measures of the family environment, providing an outline of over 100 measures which can be used to measure different aspects of family functioning We extended the findings of Tutty who reviewed commonly used measures of family functioning by reviewing all self-report family functioning measures We presented summary evidence on domains that might be useful in epidemiological research conducted among families with young children as well as in clinical work with families by non-specialists For each approach to family functioning, we identified a few key measures which were more commonly used than others These commonly used measures have been shown to be short, widely normed, clinically relevant measures, It is evident that the most commonly used measures have already shown characteristics which make them strong contenders for their continued use in future research Self report measures for assessing six different approaches to family functioning were identified, however self report measures are more suitable for measuring some aspects of family functioning than others Self report measures have proved invaluable in research assessing parental practices and discipline, with large epidemiological studies using self report measures linking problem parenting (especially harsh and inconsistent discipline) with disruptive behaviour in children (1;12) Self report measures are also fundamental in research assessing parental beliefs, as they provide the only means of tapping into this important area of family functioning Research into parent child relationships however have been most commonly examined using observational measures or semi-structured interviews Self report measures have not been shown to be as successful at assessing attachment for example, with Lim et al (in press) concluding that there are no ‘quick and ready’ measures of attachment, and that those claiming to measure such a construct are “most likely measuring something else” (13) It is clear that while self report measures offer a valuable way of assessing family functioning, there are some areas for which they are more suitable, for example beliefs as opposed to behaviours Ease of administration and cost-efficiency make self-report instruments attractive for assessing psychological constructs in large-scale research but reporting bias means the attitudes expressed might not reflect actual behaviour Some areas of family functioning appear to have substantially more measures than others There may be a degree of publication bias driven by the popularity of specific areas of research Greenberg (14) states the importance of acknowledging the effect of such bias, demonstrating the vast quantity of false information which can be created following distortions There are limitations of this review which should be acknowledged The search criteria used were potentially restrictive, only including articles with the term self report Alternative terms, for example, self completion or pencil and paper, would have broadened the search The search could have been further broadened by looking at sources beyond databases and including articles not published in English It should also be noted that there is a certain degree of subjectivity involved when assessing the themes of the instruments A key area for future research lies in the area of multi-informant data Many of the measures described claim to measure how a family functions, while only requiring the input of one member of the family Future research should aim to compare and combine self reports from different family members regarding the functioning of the family as a whole or should ask other important adults, for example, a child’s carer or teacher, to comment in order to gain multi informant data on family functioning Combining information from several informants in order to develop a more holistic measurement has been done successfully with in other fields For example, Goodman’s Strengths and Difficulties questionnaire in which information can be combined from the child, the parent and the teacher in order to develop the most sensitive and specific screening tool for child psychopathology (15) Due to the broad span of the study of family functioning, it has not been possible fully to describe each measure in detail We intend in subsequent publications to provide more detailed data on the psychometric properties of the instruments used to assess each of the domains of family functioning we have described here In conclusion, this review has identified over 100 self report measures of family functioning It has acknowledged that some of these measures are more commonly used than others, and that these measures display characteristics which make them acceptable measures for future research in the area Some areas of family functioning are better suited to research using self report measures, for example, parental beliefs, while research into behavioural characteristics may better rely more on observational measures The range of measures available in this very comprehensive field should minimise the necessity for developing new self-report measures of family functioning, except perhaps for specific areas where family functioning has not previously been explored Future research should examine the usefulness of combining information of family functioning from different informants Figure – systematic review procedure Number of records identified through database searching Number of additional records identified through other sources 1447 Number of records after duplicates removed 749 Number of records screened Number of records excluded 749 238 Number of full-text articles assessed for eligibility Number of full-text articles excluded- not self report measure 511 404 Number of studies included in qualitative synthesis 107 10 (15) Goodman R, Ford T, Simmons H, Gatward R, Meltzer H Using the Strengths and Difficulties Questionnaire (SDQ) to screen for child psychiatric disorders in a community sample International Review of Psychiatry 2003; 15(1-2):166-172 (16) Bavolek S 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