Part 1 book “Assistive technology assessment handbook” has contents: Assessing individual functioning and disability, measuring individual functioning, measuring the assistive technology MATCH, assessment of assistive technology for individuals with cognitive impairments, the special educator,… and other contents.
Assistive Technology Assessment Handbook Second Edition REHABILITATION SCIENCE IN PRACTICE SERIES Series Editors Marcia J Scherer PhD President Institute for Matching Person and Technology Professor Physical Medicine and Rehabilitation University of Rochester Medical Center Dave Muller PhD Visiting Professor University of Suffolk Past and Founding Chair of Chamber of Commerce Editor-in-Chief Disability and Rehabilitation Director Ipswich Central Ltd Published Titles Ambient Assisted Living, Nuno M Garcia and Joel J.P.C Rodrigues Assistive Technology Assessment Handbook, Second Edition, edited by Stefano Federici and Marcia Scherer Assistive Technology for Blindness and Low Vision, Roberto Manduchi and Sri Kurniawan Computer Access for People with Disabilities: A Human Factors Approach, Richard C Simpson Computer Systems Experiences of Users with and Without Disabilities: An Evaluation Guide for Professionals, Simone Borsci, Maria Laura Mele, Masaaki Kurosu, and Stefano Federici Devices for Mobility and Manipulation for People with Reduced Abilities, Teodiano BastosFilho, Dinesh Kumar, and Sridhar Poosapadi Arjunan Devices for Mobility and Manipulation for People with Reduced Abilities, Teodiano BastosFilho, Dinesh Kumar, and Sridhar Poosapadi Arjunan Geriatric Rehabilitation: From Bedside to Curbside, edited by K Rao Poduri, MD, FAAPMR Human-Computer Interface Technologies for the Motor Impaired, edited by Dinesh K Kumar and Sridhar Poosapadi Arjunan Multiple Sclerosis Rehabilitation: From Impairment to Participation, edited by Marcia Finlayson Neuroprosthetics: Principles and Applications, edited by Justin Sanchez Paediatric Rehabilitation Engineering: From Disability to Possibility, edited by Tom Chau and Jillian Fairley Quality of Life Technology Handbook, Richard Schultz Rehabilitation: A Post-critical Approach, Barbara E Gibson Rehabilitation Goal Setting: Theory, Practice and Evidence, edited by Richard J Siegert and William M M Levack Rethinking Rehabilitation: Theory and Practice, edited by Kathryn McPherson, Barbara E Gibson, and Alain Leplège Robotic Assistive Technologies: Principles and Practice, edited by Pedro Encarnỗóo and Albert M Cook Wheelchair Skills Assessment and Training, R Lee Kirby Assistive Technology Assessment Handbook Second Edition Edited by Stefano Federici and Marcia J Scherer CRC Press Taylor & Francis Group 6000 Broken Sound Parkway NW, Suite 300 Boca Raton, FL 33487-2742 © 2018 by Taylor & Francis Group, LLC CRC Press is an imprint of Taylor & Francis Group, an Informa business No claim to original U.S Government works Printed on acid-free paper International Standard Book Number-13: 978-1-4987-7411-6 (Hardback) This book contains information obtained from authentic and highly regarded sources Reasonable efforts have been made to publish reliable data and information, but the author and publisher cannot assume responsibility for the validity of all materials or the consequences of their use The authors and publishers have attempted to trace the copyright holders of all material reproduced in this publication and apologize to copyright holders if permission to publish in this form has not been obtained If any copyright material has not been acknowledged please write and let us know so we may rectify in any future reprint Except as permitted under U.S Copyright Law, no part of this book may be reprinted, reproduced, transmitted, or utilized in any form by any electronic, mechanical, or other means, now known or hereafter invented, including photocopying, microfilming, and recording, or in any information storage or retrieval system, without written permission from the publishers For permission to photocopy or use material electronically from this work, please access www.copyright.com (http:// www.copyright.com/) or contact the Copyright Clearance Center, Inc (CCC), 222 Rosewood Drive, Danvers, MA 01923, 978-750-8400 CCC is a not-for-profit organization that provides licenses and registration for a variety of users For organizations that have been granted a photocopy license by the CCC, a separate system of payment has been arranged Trademark Notice: Product or corporate names may be trademarks or registered trademarks, and are used only for identification and explanation without intent to infringe Library of Congress Cataloging-in-Publication Data Names: Federici, Stefano, editor | Scherer, Marcia J (Marcia Joslyn), 1948- editor Title: Assistive technology assessment handbook / [edited by] Stefano Federici and Marcia Scherer Other titles: Rehabilitation science in practice series 2469-5513 Description: Second edition | Boca Raton : Taylor & Francis, 2017 | Series: Rehabilitation science in practice series | Includes bibliographical references and index Identifiers: LCCN 2017028616| ISBN 9781498774116 (hardback : alk paper) | ISBN 9781498774123 (ebook) Subjects: | MESH: Self-Help Devices | Technology Assessment, Biomedical | Disabled Persons rehabilitation | Disability Evaluation Classification: LCC RM950 | NLM WB 320 | DDC 617/.033 dc23 LC record available at https://lccn.loc.gov/2017028616 Visit the Taylor & Francis Web site at http://www.taylorandfrancis.com and the CRC Press Web site at http://www.crcpress.com Contents Foreword vii Preface to First Edition ix Preface to Second Edition xiii Acknowledgments .xv Editors xvii Contributors xix Section I The Assistive Technology Assessment Process Model and Basic Definitions Stefano Federici and Marcia J Scherer Assessing Individual Functioning and Disability 13 Stefano Federici, Marcia J Scherer, Fabio Meloni, Fabrizio Corradi, Meera Adya, Deepti Samant, Michael Morris, and Aldo Stella Measuring Individual Functioning 27 Stefano Federici, Fabio Meloni, and Fabrizio Corradi Measuring the Assistive Technology MATCH 53 Fabrizio Corradi, Marcia J Scherer, and Alessandra Lo Presti Assessment of the Environments of AT Use: Accessibility, Universal Design, and Sustainability 71 Mansha Mirza, Andrea Gossett Zakrajsek, and Apeksha R Gohil Measuring the Impact of Assistive Technology on Family Caregivers 89 Louise Demers and William Ben Mortenson Section II Assessment Professionals: Working on the Multidisciplinary Team Marcia J Scherer and Stefano Federici Assessment of Assistive Technology for Individuals with Cognitive Impairments 115 Christopher Stavisky, Jaime Rosa Campeau, Simon Carson, Nancy Dukelow, Sheryl Maier, Amy Pacos Martinez, and Sarah Kysor The Special Educator 135 Susan Zapf, Trish MacKeogh, and Gerald Craddock v vi Contents The Psychologist 157 Fabio Meloni, Stefano Federici, Aldo Stella, Claudia Mazzeschi, Barbara Cordella, Francesca Greco, and Massimo Grasso The Psychotechnologist: A New Profession in the Assistive Technology Assessment 189 Klaus Miesenberger, Fabrizio Corradi, and Maria Laura Mele 10 The Occupational Therapist: Enabling Activities and Participation Using Assistive Technology 211 Desleigh de Jonge, Melanie Hoyle, Natasha Layton, and Michele Verdonck 11 Pediatric Specialists in Assistive Solutions 235 Lucia W Braga, Ingrid Lapa de Camillis Gil, Katia Soares Pinto, and Paulo Sérgio Siebra Beraldo 12 The Geriatrician 265 Martina Pigliautile, Lorenza Tiberio, Patrizia Mecocci, and Stefano Federici 13 Role of Speech–Language Pathologists in Assistive Technology Assessments 301 Katya Hill Section III Assistive Technology Devices Stefano Federici and Marcia J Scherer 14 The Systemic User Experience Assessment 329 Simone Borsci, Masaaki Kurosu, Maria Laura Mele, and Stefano Federici 15 Gesture, Signing, and Tracking 355 Michael P Craven 16 Using Brain–Computer Interfaces for Motor Rehabilitation 373 Giulia Liberati, Stefano Federici, and Emanuele Pasqualotto 17 Graphic User Interfaces for Communication 403 Maria Laura Mele, Damon Millar, and Christiaan Erik Rijnders 18 Exoskeleton: The New Horizon of Robotic Assistance for Human Gait 421 Marco Bracalenti, Fabio Meloni, and Stefano Federici 19 Assistive Technologies for Children with Autism Spectrum Disorder 435 Chiara Pazzagli, Giovanni Fatuzzo, Simone Donnari, Valentina Canonico, Giulia Balboni, and Claudia Mazzeschi 20 Technology Developments in Music Therapy 457 Wendy L Magee and Thomas Wosch Index 471 Foreword At its most general, the challenge of assistive technology (AT) assessment is to balance the technological–engineering conception of the user–AT interface with the modern biopsychosocial understanding of functioning and disability, in order to account for the user experience, without neglecting the ergonomic features of the AT The Assistive Technology Assessment Handbook elegantly achieves this balance through the integration of the Matching Person & Technology model developed by Marcia Scherer and the theoretical insights and practical applications of the “psychotechnology” of Stefano Federici This much-expanded second edition is therefore highly welcome The Handbook has tracked the salient developments in disability conceptualization, measurement, and policy development at the World Health Organization (WHO), beginning in 2001 with the endorsement of the International Classification of Functioning Disability and Health (ICF) The ICF provided both the impetus and the theoretical and technical foundations for the WHO’s World Report on Disability in 2011, the Disability Action Plan, 2014–2020 (in which access to high-quality AT is a major action objective), the launch of the Global Cooperation on Assistive Technology (GATE) initiative and the release of the World Report on Ageing and Health in 2016, and, most recently, the WHO’s Rehabilitation Call for Action 2030 Not only does the crucial importance of affordable, available, appropriate, and accessibility AT figure prominently in all of these WHO documents, but also the key components of the The Assistive Technology Assessment Model developed in the Handbook are also the building blocks of the WHO programmatic approach These are, namely, the ICF foundations, the Person-Environment Matching model, the need for multidisciplinary assessment, the key role of rehabilitation, the user-driven approach (with its full-bodied acknowledgment of the emotional, psychological, and social dimensions of the user), and the lifespan perspective The recent initiatives at the WHO have led to a more coherent and theoretically sound approach to thinking about disability, rehabilitation, and AT that directly impacts how we understand AT, its place within rehabilitation services, and the assessment process Three developments can be highlighted in this context First, after decades of silence, the WHO has now brought rehabilitation to the forefront Demographic aging and the rapidly increasing prevalence of chronic noncommunicable diseases means that people are living longer but with more disability The overall objective of rehabilitation as a health strategy is to optimize a person’s intrinsic health capacity and to enhance the person’s facilitating environment by the provision of AT so that the interaction results in optimal health and well-being, manifested by participation in all domains of life Owing to this objective, the WHO argues, rehabilitation will become the prominent health strategy of the twenty-first century The Handbook reflects this new role for rehabilitation Second, as the GATE initiative emphasizes, traditional service delivery models are responsible for the fact only out of 10 individuals who could profit from an assistive devices has access to one These models are notable for financing and procurement mechanisms and restrictive regulatory that serve primarily to limit access to AT Viewing AT as “special equipment” is a barrier to access when it sends the message that these products require high levels of regulatory scrutiny One of the many strengths of this Handbook is that it not only recognizes this issue—and the role it plays in adverse phenomena such vii viii Foreword as abandonment—but also offers thoughtful discussions about how to overcome these socially created obstacles Finally, the WHO has, at least since the development of the ICF in the late 1990s, been skeptical of the view that “disability” is a particular social marker of a minority of individuals, the so-called “people with disabilities.” Inherent in the ICF model of functioning and disability, and the Handbook as well, is the proposition that both health determinants—the impairments associated with health conditions such as diseases, injuries, and aging—and environmental determinants—including AT—create the experience of disability Since functioning in a domain is assessed on a continuum, problems in functioning—certainly when viewed across the life span—are an absolutely universal human phenomenon Everyone has, or will have, some degree of limitation in functioning—some degree of disability—in one or more domains Disability is not a matter of “yes or no” but “more or less.” Consequently, as the authors in this Handbook are fully aware, AT is not some special product or technology designed and provided to a designated minority of people called “disabled”—it is an environmental facilitator that can compensate, relieve, modify, moderate, neutralize, prevent, or merely monitor some limitation in participation in domains the individual views as important that has resulted either from an environmental restriction on performance or a health limitation on capacity In this second edition of the Assistive Technology Assessment Handbook, the same robust theoretical foundations from the first edition are supplemented with high-quality chapters setting out the Assistive Technology Assessment Model and related tools for assessment within centers for AT evaluation and provision The Handbook’s chapters explain the competencies of the diverse assessment professionals who comprise the multidisciplinary assessment team Finally, other chapters explain the role of user experience evaluation in AT assessment and introduce the reader to cutting-edge technological advances to address diverse needs in all facets of people’s lives In this last section, recognizing the impossibility of keeping abreast with technological developments, the editors wisely choose to focus on “new landscapes” in AT development—technology that tracks bodily gestures, brain–computer interfaces, graphic-user interfaces, and robotic exoskeleton assistance for mobility Reading through this third section, with all of its wonders of innovation, one might well to focus on another balance, one as challenging as that which the editors have already achieved between the user–experience and technological–ergonomic realities: Exciting new technological developments that enhance participation and well-being are of little social importance if their availability is limited to a small group of people who can afford them Breaking through the limits of our technological boundaries is challenging and exciting, but equally important is finding the social mechanisms of distribution that ensure that as many of those who could profit from a technological marvel have access to it Jerome Bickenbach Swiss Paraplegic Research, Nottwil, Switzerland and Department of Health Sciences and Health Policy University of Lucerne Preface to First Edition This book is the result of scientific collaboration and sincere friendship that was initiated in 2001 and has gradually strengthened over time The collaboration begins with the creation, at the Faculty of Psychology, University “La Sapienza” of Rome, of the first course of psychotechnology that was held in Italy This course aimed to combine multiple topics, bringing together on the one hand, technological and ergonomic arguments and issues concerning the psychology of rehabilitation in order to train competent psychologists within assistive technology provision The course, designed by Stefano Federici, addressed hundreds of Italian students who have enrolled for eight years at the University of Rome The term “psychotechnology,” with the meaning adopted and introduced in the psychology of rehabilitation by Federici, initially sounded like a neologism In fact, the objective of the course was to integrate technology and ergonomic aspects with those more specific to cognitive ergonomics, read under the lens of the biopsychosocial model of disability, in order to train psychologists with both psychological and technological expertise and who were able to lead a user to meet their needs Only in this way would it have been possible for the user to search and find a technological product that not only was satisfactory to his or her own person, but was also able to support him or her in the integration process within the relevant milieu, by preventing, compensating, monitoring, relieving, or neutralizing disability and social barriers The psychotechnologist, therefore, should possess those skills useful in centers for technical aid which, at the end of the last millennium, have begun to be characterized as autonomous centers of technology device assessment and assignment for an individual’s disability and independent living The main theoretical difficulty in designing the psychotechnologies course was to integrate technological-engineering models—not dissimilar in some ways to certain models of cognitive functioning that tend to generalize and idealize the individual—with the biopsychosocial model of disability The ergonomic approach to technology, both of cognitive and engineering types, indeed, often tends to neglect the emotional, motivational, and social user experience, so that it does not take into account those factors which very often are affecting it with a higher rate of incidence in the successful outcome in device use The discovery, by Federici, of the Matching Person and Technology model by Marcia Scherer was like the key to closing the circle It is a model that has combined people with disabilities’ needs with assistive technologies in a user-centered context, without neglecting the functional and ergonomic features of the device It was found to be the answer to that fateful question that the psychotechnologist usually turned to him- or herself, “What is the most effective integration of what I know about this unique person?” As Federici was used to repeating in the Psychotechnology course at the University of Rome: “this course could also be called Matching Person and Technology from the psychologist’s standpoint.” The collaboration between the University “La Sapienza” of Rome and the Institute for Matching Person and Technology has produced dozens of theses and several doctoral dissertations concerning the adaptation and validation of the Matching Person and Technology model and tools related to the professional profile and role of the psychologist in the assistive technology assessment and assignment processes Some of those researchers and students are now successful professionals in psychotechnology Furthermore, many authors who took part in writing chapters of the current book come from that experience of study and research ix ... 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