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Developing a Supportive Care and Psychosocial Treatment Program Stanford University Hospital, and the Ankara Oncology Research and Training Hospital Pat Fobair LCSW, MPH, Why create Supportive Care The cancer patient’s journey includes a threat to their life, and the need to face many medical and emotional challenges Each person’s ability to cope with cancer depends on their quality of life, and personal strengths Supportive care enhances patient’s coping skills and personal strengths Supportive care gives patients a place to talk about their problems Rationale for Developing Supportive Care Program Cancer patients often find it difficult to maintain their pre-onset lifestyle Sustaining Quality of Life can become a fulltime task for patients Patients find it helpful to receive information, learn coping strategies, and ways of reducing the toxicity and side effects of therapy Goals of Supportive Care Program Improve the Quality of Life for newly diagnosed cancer patients and long term survivors of cancer Reduce the severity of side effects related to disease and treatments Expand available supportive activities to meet additional needs Provide patients with education about their illness through lectures, classes, and support groups journal writing Developing Supportive Care at Stanford Our program at Stanford developed slowly, gaining acceptance Groups for patients with Hodgkin’s disease led to adding art therapy Groups for breast cancer survivors led to increasing education and activities An infusion of outside money in1999 led to a program with a larger scope Staffing at Stanford Cancer Center 2000-2005 Nurse Director Nutritionist Psychologist/Social Worker Exercise Program, Physical Therapist, exercise Physiologist Program Instructors in Yoga, Qigong, Group Therapists Community Outreach-Health Library Evaluation of Program in 2005 Increased energy=Healing imagery, Yoga, Exercise for Recovery Reduced stress=Guided imagery, Yoga, Groups, Exercise, journal writing Improved sense of well-being= Yoga, Guided imagery, Groups Today’s Supportive Care Program at Stanford’s Cancer Center, 2010 Is available in all oncology clinics Includes classes and workshops; Support groups; Exercise and fitness; Nutrition; Services to individuals and families; Supportive Care Program at Stanford, 2010 Has activities days per week 15 minute chair massage days Understanding chemotherapy x’s Exercise, Yoga, times per week Nutrition appointments days/week Groups-7 groups over days/week Writing through cancer x month Initiating Supportive Care in Turkey, 2007-2010 After meeting new colleagues, Derya Akbiyik, MD and Haldun Soygur, MD in Venice, Italy in 2006 I was invited to speak in Istanbul and Capadoccia, Turkey in 2007 In 2008, we wrote a Fulbright grant to initiate a supportive care program at the Ankara Oncology Research and Training Hospital Before an idea can be developed there has to be a dream! Specific Purpose of Program Provide patients with education about their illness Expand supportive activities in occupational and group therapy Reduce patient’s anxiety and depression Improve patients’ coping skills Improve their quality of life Planning Process: Ask Staff and Patients about Need Consult with Hospital Director and Health Minister, determine willingness to support a Supportive Care Program Ask Cancer patients to describe their stress related needs Consult with physicians, nurses psychologists, and social workers about patients’ need for psychosocial treatment Planning Process in Turkey-2008 Gained acceptance of Administrator, Consulted with patients and staff, Initiated a pilot program to demonstrate feasibility of idea, Gave feed-back on program to administration, hospital staff and physicians, Sought funding from Health Minister, government funds Our assessment of patient needs Hospital and Dormitory-housed patients spend many hours without meaningful activity Anxiety and depression among patients are frequent problems, not routinely evaluated Patients want to learn more about cancer, and how to cope with personal/family problems Patients want psychosocial treatment to help with Education about cancer & treatment Coping with personal and family problems Opportunities to talk about their illness Physical exercise, physical release Social connections Developing creative activities Anxiety and Depression were important topics Occupational Therapy Room Occupational Therapy Room Results of Survey There was a need for psychosocial treatment for hospitalized, dormitory, and clinic patients There were staff interested in working with patients in occupational therapy and group therapy programs There was adequate space that can be dedicated for this purpose Challenges on the agenda! We need to the following Create budget Secure available funding Involve physician teams: Surgical, Medical, Radiation Oncologists Assemble permanent staff dedicated to growing the Psychosocial Treatment Program for the Ankara Oncology Research and Training Hospital, a first for Turkey In closing We initiated a Psychosocial Treatment Program which enhanced the quality of patient care at Ankara Oncology Hospital The patients and the staff were enthusiastic about participating in this therapeutic program If increased support and funding are forthcoming this innovative program will be expanded Thank you ... initiated a Psychosocial Treatment Program which enhanced the quality of patient care at Ankara Oncology Hospital The patients and the staff were enthusiastic about participating in this therapeutic... in Istanbul and Capadoccia, Turkey in 2007 In 2008, we wrote a Fulbright grant to initiate a supportive care program at the Ankara Oncology Research and Training Hospital Before an idea can be... Surgical, Medical, Radiation Oncologists Assemble permanent staff dedicated to growing the Psychosocial Treatment Program for the Ankara Oncology Research and Training Hospital, a first for Turkey
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