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Cấu trúc
Title
Copyright
Dedication
Contents
Preface
Contributors
Part I: Impact of the Disease
1 Chronicity
Introduction
Impact of Chronic Illness
Interventions
Summary
References
2 The Illness Experience
Introduction
Impact and Issues Related to Illness Behavior
Interventions
Outcomes
References
3 Stigma
Introduction
Theoretical Frameworks: Stigma, Social Identity, and Labeling Theory
Impact of Stigma
Interventions: Coping with Stigma or Reducing Stigma
Outcomes
References
4 Adaptation
Introduction
Impact
Overview of Coping
Interventions
Summary
References
5 Social Isolation
Introduction
Problems and Issues of Social Isolation
Interventions: Counteracting Social Isolation
Outcomes
References
6 Body Image
Introduction
Assessment of Body Image
Body Image Issues Important to Chronic Illness
Interventions
Outcomes
References
7 Uncertainty
Introduction
Theoretical Underpinnings of Uncertainty
Interventions
Outcomes
References
8 Quality of Life
Introduction
Conceptualizing and Measuring Quality of Life
Evidence-Based Interventions to Promote Quality of Life
Outcomes
References
9 Adherence
Introduction
Issues Related to Examining Adherence Behavior
Interventions to Enhance Adherence Behavior
References
Part II Impact on the Client and Family
10 Family Caregiving
Introduction
Problems and Issues
Interventions
Care Recipient, Caregiver, and Caregiving System Outcomes
References
11 Sexuality
Introduction
Sexuality and Chronic Illness
Interventions
Outcomes
References
12 Powerlessness
Introduction
Problems and Issues Associated with Powerlessness
Interventions
Outcomes
References
13 Culture and Cultural Competence
Introduction
Impact
Interventions
Outcomes
References
14 Self-Care
Introduction
Key Issues and Frameworks for Viewing Self-Care Within Chronic Illness
Key Issues in Promoting Self-Care in Persons with Chronic Illness
Interventions
Outcomes
References
15 Client and Family Education
Introduction
Influences on Teaching and Learning
Educational Interventions for the Client and Family
Summary and Conclusions
References
Part III Impact of the Healthcare Professional
16 Health Promotion
Introduction
Issues and Impact
Interventions
Outcomes
References
17 APRNs in Chronic Illness Care
Introduction
APRN Core Competencies in Chronic Illness Care
Contributions of APRNs in Chronic Illness Care
Improving APRN-Delivered Chronic Illness Care
Summary and Conclusions
References
18 Complementary and Alternative Therapies
Introduction
Cancer
Issues
Interventions
Outcomes
Acknowledgment
References
Part IV Impact of the System
19 Models of Care
Introduction
Impact
Interventions
Outcomes
References
20 Home Health Care
Introduction
Theoretical Frameworks for Management of Chronic Illnessin Home Care
Interventions
Outcomes
References
21 Long-Term Care
Introduction
Problems and Issues in Long-Term Care
Intervention
Outcomes
References
22 Palliative Care
Introduction
Problems and Barriers Related to Palliative Care
Interventions
Outcomes
References
23 Health Policy
Introduction
Problems and Key Issues
Interventions: Politics, A Caring Action
Outcomes
References
24 Rehabilitation
Introduction
Rehabilitation Issues and Challenges
Interventions
Outcome Measurement and Performance Improvement
References
Index
Nội dung
[...]... definition of chronicillness is offered: Chronicillness is the irreversible presence, accumulation, or latency of disease states or impairments that involve the total human environment for supportive care and self-care, maintenance of function, and prevention of further disability” (Curtin & Lubkin, 1995, pp 6–7) IMPACT OF CHRONICILLNESS This section addresses the influence of chronic illnesses and impact. .. in Chronic 17 Ann Marie Hart Illness Care Introduction 457 457 APRN Core Competencies in ChronicIllness Care Contributions of APRNs in ChronicIllness Care 472 Improving APRN-Delivered ChronicIllness Care Summary and Conclusions References 480 Introduction Issues 485 493 495 Interventions Outcomes 503 505 Acknowledgment References Part IV 505 506 Impact of the System Models of Care 19 Pamala D Larsen. .. (Centers for Medicare and Medicaid, 2008) Van Den Bos and colleagues (2011) estimate that the annual Impact of ChronicIllness Table 1-1 Topics of Healthy People 2020 Access to health services HIV Adolescent health* Immunization and infectious diseases Arthritis, osteoporosis, andchronic back conditions Injury and violence prevention Blood disorders and blood safety* Lesbian, gay, bisexual, and transgender... quality of life Defining Chronicity —Jenny, wife of a 63-year-old cancer patient These patient stories chronicle part of the illness experience The illness experience is nursing’s domain Thus, the focus of this book is on the illness experience of individuals and families, and not specific disease processes While nursing cannot cure chronic disease, nursing can make a difference in the illness experience... definitions of chronic disease are important, from a nursing perspective we are far more interested in how the illness is affecting the client and family What is the illness experience of the client and family? Price (1996) suggests that the onus of defining chronic illness, and similarly, quality of life and comfort, should be that of the client’s, as only the client truly understands the illness However,... identify ourselves as citizens of that other place” (p 3) My husband and I are now in “that other place”—the land of chronicillness One would think that being a registered nurse for 42 years and caring for those with chronicillness in many settings would have made me an expert in this land This is my area; I teach about it, know about it, and edit this textbook This is “me.” However, I didn’t realize... such as an alteration in structure and function Illness, on the other hand, is the human experience of symptoms and suffering, and refers to how the disease is perceived, lived with, and responded to by individuals, their families, and their healthcare providers Although it is important to recognize the pathophysiological process of a chronic disease, understanding the illness experience is essential... is to consider chronicillness as a culture Although we often believe that each disease is different, there are multiple tasks that are similar, andillness experiences may look alike across diseases Strauss (1975) was among the first researchers to recognize the similar issues and tasks within the culture of chronicillness Generally, the culture of chronicillness includes preventing and managing medical... decrease the impact of chronic disease Professional Education One of the challenges in chronic disease care and management is educating healthcare professionals about providing care tailored to those with chronic 13 14 CHAPTER 1 / Chronicity disease The differences are vast between caring for a person with an acute illness on a short-term basis, and caring for those over the long haul with a chronic condition... older adults as a criterion for licensure and certification More stringent training standards would be implemented for direct-care providers by increasing existing federal training requirements and establishing state-based standards And finally, because informal caregivers continue to play important roles in the care of older adults (with and without chronic illness) , training opportunities should also . this product, use ISBN: 97 8-1 -4 49 6-4 90 5-0 Library of Congress Cataloging-in-Publication Data Chronic illness : impact and intervention / [edited by] Ilene M. Lubkin and Pamala D. Larsen. 8th ed. . p. ; cm. Includes bibliographical references and index. ISBN-13: 97 8-0 -7 63 7-9 96 6-3 ISBN-10: 0-7 63 7-9 96 6-1 I. Lubkin, Ilene Morof, 192 8-2 005. II. Larsen, Pamala D., 194 7- [DNLM: 1. Chronic.