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KISKÂYITAMAWIN
MIYO-MAMITONECIKAN
1
URBAN ABORIGINAL WOMEN
AND MENTAL HEALTH
Roberta Stout
June 2010
1.
kiskâyitamawin miyo-mamitonecikan
is a Plains Cree word which means
“knowing mind fullness”
Project #215
KISKÂYITAMAWIN MIYO-MAMITONECIKAN
URBAN ABORIGINAL WOMEN
AND MENTAL HEALTH
Roberta Stout
June 2010
Prairie Women’s Health Centre of Excellence (PWHCE) is one of the Centres of
Excellence for Women’s Health, funded by the Women’s Health Contribution Program
of Health Canada. PWHCE supports new knowledge and research on women’s health
issues; and provides policy advice, analysis and information to governments, health
organizations and non-governmental organizations. The views expressed herein do not
necessarily represent the official policy of the PWHCE or Health Canada.
The Prairie Women’s Health Centre of Excellence
56 The Promenade
Winnipeg, Manitoba R3B 3H9
Telephone (204) 982-6630
Fax (204) 982-6637
pwhce@uwinnipeg.ca
This is project #215 of the Prairie Women’s Health Centre of Excellence.
ISBN 978-1-897250-30-3
KISKÂYITAMAWIN
MIYO-MAMITONECIKAN
1
URBAN ABORIGINAL WOMEN
AND MENTAL HEALTH
Roberta Stout
June 2010
1.
kiskâyitamawin miyo-mamitonecikan
is a Plains Cree word which means
“knowing mind fullness”
K
ISKÂYITAMAWIN
M
IYO
-M
AMITONECIKAN
:
U
RBAN
A
BORIGINAL
W
OMEN AND
M
ENTAL
H
EALTH
i
Acknowledgments
First and foremost, we wish to acknowledge all the Aboriginal women who came
forward to share their personal stories and experiences with mental illness and
mental health services in Winnipeg and Saskatoon. We are grateful for their
courageous and powerful contributions to this project and for their collective
visioning for better meeting the mental health needs of Aboriginal women.
Prairie Women’s Health Centre of Excellence would like to thank our esteemed
Elders for providing their cultural understandings on mental health and well-being.
We also extend our appreciation to the front-line workers, Dr. Caroline Tait, PhD
and Madeleine Dion Stout, for providing invaluable on-the-ground perspectives on
mental health issues faced by Aboriginal women along with research, service
delivery and policy recommendations.
We also acknowledge the Native Women’s Transition Centre, the Central Urban
Métis Federation Inc., White Buffalo Youth Lodge, Partners for Careers at the Murdo
Scribe Centre, and the University of Winnipeg for providing spaces for holding our
interviews and focus groups.
Finally, PWHCE wishes to thank the tireless researchers who collaborated on this
project: Marlene Larocque, Julia Peristerakis and Ann Kielo, and Rick Harp and
Sheryl Peters for their editing assistance.
K
ISKÂYITAMAWIN
M
IYO
-M
AMITONECIKAN
:
U
RBAN
A
BORIGINAL
W
OMEN AND
M
ENTAL
H
EALTH
ii
I’m going to get help. I am determined.
‘Cause if I don’t get help, I’m worried that
I’m going to lose everything I have.
And I just don’t think that
anybody understands that.
— Interviewee
K
ISKÂYITAMAWIN
M
IYO
-M
AMITONECIKAN
:
U
RBAN
A
BORIGINAL
W
OMEN AND
M
ENTAL
H
EALTH
iii
TABLE OF CONTENTS
ACKNOWLEDGEMENTS i
TABLE
OF
CONTENTS iii
ACRONYMS v
EXECUTIVE
SUMMARY vii
RÉSUMÉ xiii
SECTION
1: INTRODUCTION
AND
BACKGROUND
TO
THE
PROJECT 1
Introduction 1
Background 1
Methodology and procedures 3
Limitations 4
Participant demographics 4
Lifelong experiences 6
SECTION 2: LOOKING
BACK
OVER
A
LIFETIME:
FRAMING
ABORIGINAL
WOMEN’S
EXPERIENCES 9
Women’s reflections and narratives on childhood, teen and
adulthood experiences 10
Framing childhood/teen experiences 11
Child sexual abuse 11
Child protection services 13
Racism/discrimination and identity 17
Residential schools 20
SECTION
3:
ABORIGINAL
WOMEN’S
PERSPECTIVES
ON
MENTAL
HEALTH 23
Defining mental health 23
Self-assessed mental health 25
Coping with their mental health 28
SECTION
4:
BARRIERS
TO
“KNOWING
MIND
FULLNESS” 35
Anonymity 36
Confidentiality and trust 36
Inter-personal relationships 37
Fear of losing children 40
Lack of childcare within mental health programming 41
Cookie cutter approaches 41
Lack of cultural awareness and training of mental care workers 42
Fear of institutionalized care settings 43
Misdirected focus of mental health programs 45
K
ISKÂYITAMAWIN
M
IYO
-M
AMITONECIKAN
:
U
RBAN
A
BORIGINAL
W
OMEN AND
M
ENTAL
H
EALTH
iv
Process: waiting lists, diagnosis and referrals 45
Lack of validation 47
Distribution, usability and access to mental health information racism 49
Physical disabilities 50
Side-effects of medication, over-medication and the wrong medication 50
Stigma 52
SECTION
5:
ABORIGINAL
WOMEN’S
MENTAL
HEALTH
NEEDS:
THROUGH
THEIR
OWN
EYES,
IN
THEIR
OWN
WORDS 57
The need to be heard and receive answers 57
The need to talk to someone 58
The need for care, support and acceptance 61
SECTION
6:
CONCLUSION
ABORIGINAL
WOMEN
ENVISAGE
“KNOWING
MIND
FULLNESS” 69
Policy implications 75
REFERENCES 79
ADDITIONAL READINGS 82
APPENDIX 1: One-to-one interview guide 85
APPENDIX 2: Focus group guide 87
APPENDIX 3: Interview guide with elders 89
APPENDIX 4: Interview guide with front-line workers 91
APPENDIX 5: Interview guide with researcher 93
APPENDIX 6: PWHCE project team member observations on researching mental
health services and programs in Winnipeg 95
K
ISKÂYITAMAWIN
M
IYO
-M
AMITONECIKAN
:
U
RBAN
A
BORIGINAL
W
OMEN AND
M
ENTAL
H
EALTH
v
A
CRONYMS
AHF Aboriginal Healing Foundation
AFN Assembly of First Nations
CWHN Canadian Women’s Health Network
CCPA Canadian Centre for Policy Alternatives
FNIHB First Nations and Inuit Health Branch
INAC Indian and Northern Affairs Canada
IPHRC Indigenous Peoples’ Health Research Centre
ITK Inuit Tapiriit Kanatami
MWAC Mental Wellness Advisory Committee
NAHO National Aboriginal Health Organization
NCCAH National Collaborating Centre for Aboriginal Health
NWAC Native Women’s Association of Canada
PWHCE Prairie Women’s Health Centre of Excellence
RHS First Nations Regional Longitudinal Health Survey
K
ISKÂYITAMAWIN
M
IYO
-M
AMITONECIKAN
:
U
RBAN
A
BORIGINAL
W
OMEN AND
M
ENTAL
H
EALTH
vi
[...]... Emphasize mental health promotion and mental illness prevention along with diagnosis and treatment by providing mental health KISKÂYITAMAWIN MIYO-MAMITONECIKAN: URBAN ABORIGINAL WOMEN AND MENTAL HEALTH xi literacy training for health and social services professionals and mental health first-aid training to family and friends iv Advocate person-centered care for Aboriginal women with lived mental health. .. incorporate oral traditions and examples of mental health and well-being) iv Utilize a gender balanced framework in further research on Aboriginal women s mental health 3 Reframe mental health services and supports so they mirror Aboriginal women s realities, living conditions and aspirations for hope and recovery i Improve Aboriginal women s access to mental health services and supports and enhance their attachment... Aboriginal women More specifically the research sought to answer the following five questions: 1 What are the key factors influencing Aboriginal women s mental health? 2 What does mental health mean to Aboriginal women? 3 Are Aboriginal women aware of and/ or using available mental health resources? 4 What are Aboriginal women s mental health needs? 5 What would Aboriginal women suggest for future policy and. .. research on the meaning and application of an Aboriginal lens when addressing the mental health and well-being of Aboriginal women i x Deepen the public understanding of the worldviews of Aboriginal women emphasizing the wholeness of the mind, body and spirit but also by examining the women s views of the world which they KISKÂYITAMAWIN MIYO-MAMITONECIKAN: URBAN ABORIGINAL WOMEN AND MENTAL HEALTH generally... MIYO-MAMITONECIKAN: URBAN ABORIGINAL WOMEN AND MENTAL HEALTH ix POLICY IMPLICATIONS 1 Examine how cultural (relationships) and structural (policy) level changes can be made to serve and support the mental health and wellbeing of Aboriginal women in the changing policy climate Cultural changes i Catalyze conversations on everyday forms of mental health and wellbeing to determine what is working for Aboriginal women. .. in the area of mental health? Background As part of a response to emerging regional and national health priorities PWHCE proposed an interprovincial (Saskatchewan and Manitoba) exploratory project focusing on the issue of Aboriginal women s mental health As Aboriginal women s health generally - and their mental health specifically - remain largely unexplored compared with other women s health research... Aboriginal women s concepts of mental health and well-being, key factors impacting the mental health of Aboriginal women, experiences with the mental health services and programs and what would lead to better outcomes for their mental well-being Community organizations, service providers and educational institutes, who are known to have high traffic of Aboriginal community women, students and professionals,... 46 Aboriginal women from Winnipeg and Saskatoon to talk about their mental health concerns, needs and coping strategies, and particularly to gather their suggestions on how to better improve the mental health services and programs This report seeks to fill a gap in the current knowledge on understanding mental health through the unique and diverse community-based perspectives and narratives of Aboriginal. .. of mental health, it was also becoming a topic on the national agenda for Aboriginal and non -Aboriginal organizations alike Aboriginal organizations, such as the National Aboriginal Health Organization (NAHO) recognized mental health and mental wellness as emerging fields and called for a greater understanding of these areas specific to Aboriginal peoples (Kinnon, 2002) In a chapter related to mental. .. stories, experiences, knowledge and wisdom of Aboriginal women who live with mental health problems and illnesses iii Bring into sharper relief the optimism, pragmatism, resilience and human agency of Aboriginal women living with mental health illnesses iv Understand the impacts of residential schools, foster care and the biomedical model of health care lived by Aboriginal women by taking a critical look . research on Aboriginal women s mental health. 3. Reframe mental health services and supports so they mirror Aboriginal women s realities, living conditions and aspirations for hope and recovery the mental health needs of Aboriginal women. Prairie Women s Health Centre of Excellence would like to thank our esteemed Elders for providing their cultural understandings on mental health and. lived mental health experiences in order to better define, identify and remedy their health disparities and inequities. ii. Provide mental health services and supports to Aboriginal women close
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