palliative and end of life care for children and families

... health-related quality of life measure for children and preadolescents with temporomandibular disorder Health and Quality of Life Outcomes 2011 9:32 Submit your next manuscript to BioMed Central and take full ... Vertical range of motion of the mandible Extent of unassisted opening without pain, maximum unassisted opening and maximum assisted opening Mandibular excursive movements Extent of lateral and protrusive ... Temporomandibular Joint Sounds Palpation of the TMJ for clicking, grating, and crepitus sounds during vertical, lateral and protrusive jaw excursions Muscle and Joint Palpation for Tenderness...

Ngày tải lên: 20/06/2014, 15:20

... were performed for the VAS and TTO data to estimate the effect of the different domains, the effect of being member of one of the two patient groups, and the effect of the assessment of the patients’ ... Page of Table Coefficients (standard error) of different regression analyses on VAS values for the general population and for the two patient groups based on variables for the domains (for each ... calculated for the background characteristics of the three samples Then frequency distributions were made for the classification of the patients’ health state Mean scores and standard errors of the...

Ngày tải lên: 12/08/2014, 01:22

... RG, Piva JP: End- of- life care in Brazil Intensive Care Med 2007, 33:1014-1017 10 Lisboa T, Friedman G: Forgoing life support in Intensive care units of South Brazil: the results of and ethical ... Critical Care Medicine: Recommendations for end- of- life care in the intensive care unit: a consensus statement by the American College of Critical Care Medicine Crit Care Med 2008, 36:953-963 Soares ... the study of Fumis and Deheinzelin [1] provides valuable information to understand and improve decision-making processes at the EOL and to support the reformulation of competencies and skills...

Ngày tải lên: 14/08/2014, 07:21

... methodological and conceptual problems when developing paediatric health-related quality of life measures For example, children' s understanding of illness and health is age dependent due to social, ... prevalence of oral impacts The importance of oral health-related quality of life is particularly relevant for children Their perceptions are important as a number of their social and psychological ... They are useful in moving the focus of provision of health services to patient's perceived needs and quality of life Thus the provision of dental care on children should address not just their...

Ngày tải lên: 20/06/2014, 15:20

... Critical Care February 2003 Vol No Rubenfeld and Curtis helping families weigh the burdens and benefits of ongoing intensive care, are essential to excellent end- of- life care These communication and ... the ICU and critical illness, and making lay or professional counselors available to families [19] 12 Great strides have been made in defining ethical principles to guide end- of- life care in ... consensus on many aspects of end- of- life care in the ICU exist and have been written about at great length We should not let the exciting challenge of resolving areas of disagreement dissuade...

Ngày tải lên: 12/08/2014, 19:22

... noted in HRQL by parents of healthy children and children with chronic health conditions and carers of children in local authority care The reproducibility and responsiveness of the MMQL-UK (PF) were ... Minimum and maximum values represent the lowest and highest scores for the individual components of each of the sub-scales Page of (page number not for citation purposes) Health and Quality of Life ... Quality of Life Instrument (MMQL-UK (PF)) that could be used in parallel with the child version to assess the HRQL of children Page of (page number not for citation purposes) Health and Quality of Life...

Ngày tải lên: 18/06/2014, 22:20

... health care workers of the decision to withdraw life support from the critically ill JAMA 1995, 273:703-708 Vincent JL: Forgoing life support in western European intensive care units: results of ... Crit Care Med 1999, 16:1626-1633 American Thoracic Society Withholding and withdrawing lifesustaining therapy Ann Intern Med 1991, 115:478-485 The Ethics Committee of the Society of Critical Care ... Siegler M: The illusion of futility in clinical practice Am J Med 1989, 87: 81-84 10 Burt RA: The medical futility debate: patient choice, physician obligation, and end- of- life care J Palliat Med...

Ngày tải lên: 12/08/2014, 19:22

... prevent and manage delirium The last component of the ABCDE bundle is related to the need for early mobility and exercise (the E of the ABCDEs) to prevent and rehabilitate the muscles and nerves of ... of the MENDS randomized controlled trial Crit Care 2010, 14:R38 16 Strom T, Martinussen T, Toft P: A protocol of no sedation for critically ill patients receiving mechanical ventilation: a randomised ... approach to the back -end of care for these vulnerable patients is possible, but it is irresponsible in light of the growing body of evidence that says we can so much better for our patients Given...

Ngày tải lên: 13/08/2014, 20:22

... the Centers for Disease Control and Prevention, the Agency for Healthcare Research and Quality, the Centers for Medicare and Medicaid Services, the Office of Minority Health, and professional ... Department of Defense; the Department of Education; the Centers for Disease Control and Prevention; the Centers for Medicare and Medicaid Services; the Administration for Children, Youth, and Families; ... technology efforts for M/SU health care M/SU health care also lags behind general health care in its use of information technology To realize the potential of the NHII for consumers of M/SU health care, ...

Ngày tải lên: 22/03/2014, 16:21

... estimates for the PedsQL™ Generic Core Scales and for the Cardiac Module across all ages of the patient and comparison groups are presented in Tables and Table The recommended standard of 0.70 for ... health-related quality of life in children with ESRD: performance of the generic and ESRD-specific instrument of the Pediatric Quality of Life Inventory (PedsQL) American Journal of Kidney Diseases ... Health and Quality of Life Outcomes 2010, 8:14 http://www.hqlo.com/content/8/1/14 Page of 12 Table Intercorrelations of subscales of the Pediatric Quality of Life Inventory™ Generic Core Scales and...

Ngày tải lên: 18/06/2014, 19:20

... were 0.424 for disease and physical; 0.515 for physical and social; 0.777 for social and psychological; and 0.612 for psychological and satisfaction Criterion validity of the short-form of BPH-QLS ... Health and Quality of Life Outcomes 2009, 7:24 development of shorter questionnaires The aim of this study was to construct and validate the short-form of BPHQLS and to compare its ... domains of the short-form of BPH-QLS and SF-36 were significantly correlated (p < 0.01) with CCs of 0.267~0.773, most of which were > 0.300 The disease domain of the new scale and that of the...

Ngày tải lên: 18/06/2014, 19:20

... indispensable for making the moment of death more comfortable These elements are substantially consistent to clinical and organizational praxis of palliative care, i.e the understanding and satisfaction of ... The good and bad perceptions of health professionals working in palliative care Eur J Cancer Care 1996, 5:237-241 Keizer MC, Kozak JF and Scott JF: Primary care providers' perceptions of care J ... 'non-believers' Good Death for 'believers' Loss of individuality End of subjective life Being aware of dying Not losing control of the situation Attention given to scene of death Importance of living well...

Ngày tải lên: 20/06/2014, 15:20

... and the selection of lifecycle options Lifecycle options: The lifecycle options of a product and its components determine the basic structure of scenarios In order to manage combinations of lifecycle ... structure model Lifecycle flow: This is the central model of the lifecycle scenario, and represents the flow of products, components, materials, information and money in the form of a lifecycle process ... description of scenarios and its facilitation of lifecycle strategy development Keywords: lifecycle design, end- of- life strategy, lifecycle scenario Introduction Promising approaches for sustainable development...

Ngày tải lên: 20/06/2014, 21:20

... and the selection of lifecycle options Lifecycle options: The lifecycle options of a product and its components determine the basic structure of scenarios In order to manage combinations of lifecycle ... structure model Lifecycle flow: This is the central model of the lifecycle scenario, and represents the flow of products, components, materials, information and money in the form of a lifecycle process ... description of scenarios and its facilitation of lifecycle strategy development Keywords: lifecycle design, end- of- life strategy, lifecycle scenario Introduction Promising approaches for sustainable development...

Ngày tải lên: 21/06/2014, 17:20

... sensitivity and specificity of the single-item global quality of life scale compared to a 50% threshold for the cystic fibrosis quality of life scale The single item global quality of life score ... as: Yohannes et al.: Reliability and validity of a single item measure of quality of life scale for adult patients with cystic fibrosis Health and Quality of Life Outcomes 2011 9:105 ... of life scale for adult patients with cystic fibrosis domain and 0.79 for the depression sub-domain [6,7] The sensitivity and specificity of the HAD depressive or anxiety symptoms (at a cut off...

Ngày tải lên: 11/08/2014, 23:22

... of the cohort studies [1-4], for such children minimal treatment was available and the prevalence of HIV Table 1: Assumptions, distributions and sources of model parameters Parameter Mean Standard ... average of $203 per child, 70% of which was due to RUTF and Valid International's costs (Tables and 3) Health centre visits and hospital admissions accounted for 30% of the CTC costs Of Valid ... 51% were for personnel, 42% were for travel and subsistence, and 7% were for other items The results of the Monte Carlo simulation, from which confidence intervals and probabilities of cost effectiveness...

Ngày tải lên: 13/08/2014, 11:22

... A case for education in palliative and end- of- life care in emergency medicine Acad Emerg Med 2009, 16(2):181-183 Michelson KN, Steinhorn DM: Pediatric end- of- life issues and palliative care Clin ... curriculum and other forums End- oflife decision making and utilization of health care resources should reflect cultural standards and beliefs Awareness of cultural beliefs, attitudes, and traditions ... effective and individualized care for their patients Changes in the implementation of palliative care can also be made in order to improve end- of- life care For example, Wiese et al suggest the use of...

Ngày tải lên: 13/08/2014, 23:20

... American Academy of Critical Care Medicine recommendations for end- of- life care in the intensive care unit: a consensus statement by the American College of Critical Care Medicine Crit Care Med 2008, ... Study Group: End- of- life practices in European intensive care units: the Ethicus Study JAMA 2003, 290:790-797 Prendergast TJ, Claessens MT, Luce JM: A national survey of end- of- life care for critically ... considerations, difficulties and documentation of end- of- life decisions in European intensive care units: the ETHICUS Study Intensive Care Med 2008, 34:271-277 Hall RI, Rocker GM: End- of- life care in the ICU:...

Ngày tải lên: 14/08/2014, 07:21

... Bill of Materials DP - Dynamic Programming ELDA - End- of- Life Design Advisor ELSEIM - End- of- Life Strategy Environmental Impact Model ELV - End- of- Life Vehicles EoL - End- of- Life EPR - Extended ... information 55 Figure 4-2: Scope of Section 4.2 – identification of end- of- life options 57 Figure 4-3: Flowchart for the capture of product structure information and identification of end- of- life ... add-in for Microsoft Excel .90 Figure 5-6: Scope of Section 5.2 – product end- of- life planning 92 Figure 6-1: Software architecture of decision-support model for product end- oflife planning...

Ngày tải lên: 09/09/2015, 11:16

... redirect care away from institutional services (use of long-term care homes and hospital care) and achieve improved quality of life and reduced caregiver burden The specific features of successful ... (Commonwealth Department of Health and Aged Care, 2001; Department of Health and Ageing, 2007) 3.2 Reviews of Programs of Integrated Health and Social Care of the Elderly Kodner and Kyriacou (2000) ... of health care services and the growth in the elderly population (Hofmarcher, Oxley and Rusticelli, 2007) The goals of integrated care efforts have been to improve accessibility, quality of care...

Ngày tải lên: 14/03/2014, 17:20