changes in the provision of health care to children and adolescents

... vitamins including B12112 and riboflavin113 have been reported Folic acid and vitamins B6 and B12 are important co-factors in metabolism of the sulphurcontaining amino acid homocysteine, and deficiencies ... Many of these changes were found to be less pronounced and inconsistent in children, and some investigators considered this appearance in SCD to be an exaggeration of the normal characteristics of ... occurs early in life Booker et al.25 reported weight deceleration starting at about 4–6 months of age, coinciding with the onset of crises and infections and continuing during the 1st years of life...

Ngày tải lên: 12/02/2014, 19:20

... associations indicate the importance of further consideration of internalizing symptoms and particularly parenting stress in the assessment of HRQOL and in efforts to improve functioning of youth ... Critical issues and needs in health- related quality of life assessment of children and adolescents with chronic health conditions In Measuring Health- related Quality of Life in Children and Adolescents: ... contributed to the conception and design of the study, acquisition of data, analysis and interpretation of data, and drafting and revision of the manuscript She has given final approval of this version...

Ngày tải lên: 18/06/2014, 19:20

... of SCD, such as hypoxia, hypovolemia, hypothermia and hyperviscosity, were prevented by monitoring his vital signs and maintaining them within tight ranges Anaesthesia from the beginning up to ... beginning up to the end of surgery lasted 80 minutes Postoperative care, including fluid management and weaning off the respirator with extubation on the day of the surgery, was provided by the hospital’s ... of SCD For that reason, it is essential to maintain normovolemia, normothermia and normoxemia during anaesthesia and the perioperative period [5,6] The clinical symptoms of SCD, which start in...

Ngày tải lên: 11/08/2014, 12:20

... status, and employment Health care professionals working with the SCD population need to be aware of these factors They need to ensure continuing education of the patients, and hence increase further ... enable us to gain understanding into mechanisms of depression in this disease population and how these may vary among different genotypes The main limitations of this study relate to the instrument ... were also included on their utilization of the clinic (SCU) services, frequency of painful crises, and whether they had leg ulceration as a result of their sickle cell disease Pain was defined as...

Ngày tải lên: 11/08/2014, 16:22

... determined by high performance liquid chromatography and isoelectric focusing analysis and grouped into phenotypes of hemoglobin SS or hemoglobin SC Children were included in the asthma group if they ... sickle hemoglobin to gel, inducing red blood cell sickling and vaso-occlusion within pulmonary blood vessels Asthma is the most common chronic disease of childhood occurring in 6% of the general ... complications of sickle cell disease including acute chest syndrome and cerebral vascular accidents compared to children with sickle cell disease alone The significance of these findings relates to the...

Ngày tải lên: 13/08/2014, 13:22

... purpose of the study and assured them of confidentiality of privileged information and a feedback after the study as told to them in the last meeting Then the researchers requested for volunteers in ... members of the fathers and mothers Interestingly, his/her present state he/she picked it from them and whatever he/she becomes is the handiwork of the parents as family is said to be the cradle of the ... facilities since mostly mothers stay with their children in the hospitals or accompany them to the hospitals, most mothers are more caring than fathers regardless of the diagnoses of their children...

Ngày tải lên: 12/02/2014, 19:20

... maintained (NIH, 2009a) The remaining 99% of the body’s calcium is stored in the bones and teeth where it supports their structure There is constant reabsorption and deposition of calcium into ... that in spite of chronic disease, growth is the number one indicator of the overall health and well-being of a child The medical team must be able to recognize the onset of growth disturbances in ... the SCD population; however, this finding supports the benefit of increasing fat, protein, and carbohydrate intake It is the role of both the registered nurse and advanced practice nurse to carefully...

Ngày tải lên: 12/02/2014, 19:20

... represents the efforts of those who have dedicated their professional careers to the care of individuals with sickle cell disease The names of the authors, their affiliations, and their e-mail addresses ... entitled to the information and can benefit from knowing the child’s carrier status, in part because the information may influence their reproductive decision-making Therefore, parents of infants ... do?” Since counseling goals are based entirely upon the principle of self-determination, and are not intended to be preventive, the counselor’s success is not determined by a decline in the incidence...

Ngày tải lên: 21/02/2014, 12:20

... barriers to the use of pain medications We also identified one study that investigated the impact of an intervention to improve receipt of routine healthcare and, partly because of the strength of the ... leading to the development of anemia and the release of free hemoglobin into the circulation, a phenomenon that is also injurious to the endothelium The term sickle cell anemia refers to the ... between the data abstracted and the data appearing in the article, this discrepancy was brought to the attention of the investigator in charge of the specific data set, and the data were corrected in...

Ngày tải lên: 05/03/2014, 10:20

... clarithromycin or clindamycin * Other antibiotics used in other centres include amoxicillin and erythromycin-sulfamethoxazole In making the recommendations above the Child Health Network have weighed the ... documented in the health record to confirm the patient’s location should the health care team need to contact them Assessment and Treatment: Outpatient Antimicrobial Therapy: Following the initial ... pain, fever or respiratory symptoms) Encourage the patient to drink, monitor intake and output Initiate an IV (if febrile, dehydrated or in moderate to severe pain) For mild to moderate pain...

Ngày tải lên: 05/03/2014, 12:20

... suffering to them CBT can be offered to patients with SCD individually or in groups There is some evidence to suggest that CBT helps to reduce health service utilization in both children and adolescents ... status and health service utilization seem to make only a limited contribution to understanding the pattern of poor quality of life, suggesting that haematologists should examine other factors ... result of frequent pain, hospitalizations and loss of schooling (in children) and employment (in adults) These accounts could indicate depressive symptoms and should not be ignored by haematologists...

Ngày tải lên: 14/03/2014, 11:20

... functioning The total score is comprised of the average of all items in the questionnaire The psychosocial summary score is comprised of the average of the items in the emotional, social, and school ... score, and family functioning summary score The total score is comprised of the average of the responses to all items in the questionnaire The parent HRQL summary score is determined by averaging the ... proxy-reporting of their child's HRQL in children with sickle cell disease In a study of healthy children, parents' HRQL was shown to correlate with their proxy reporting of the child's HRQL [11] The...

Ngày tải lên: 18/06/2014, 18:20

... further study of their possible weaknesses and strengths Therefore, the specific aims of this study are to: i) assess the properties of WHOQOL-BREF in SCD; and ii) compare the properties of the ... groups experiencing different frequencies of painful crises Pain is a major indicator of health- seeking and hospitalization in these patients [38,39,42-45], and those with frequent painful crises ... values of 70 and over were deemed acceptable [37] The floor and ceiling effects were measured for the scales and their domains with floor effect being the percentage of subjects with the lowest...

Ngày tải lên: 18/06/2014, 19:20

... notification network, the investigators were informed of any case of SCA presenting during the study period, and each patient was then evaluated by one of the investigators using the standardized format ... in the study population with 84 (71.2%) occurring in the lower limbs, 33 (28.0%) in upper limbs and (0.8%) in the spine An analysis of the pattern of regional anatomic involvement according to ... musculo-skeletal presentation of SCA and occurs predominantly in patients below the age of 10 years The predominant presentation in adolescents is AVN, with majority of them presenting in the late stage Multiple...

Ngày tải lên: 20/06/2014, 04:20

... performed in the United States of America As the healthcare system and the origins of the patient population in the USA differ from Western Europe, findings from these studies cannot be generalized to ... SCD using a self-report measure and a control group of healthy siblings In general, the HRQoL of children with SCD appeared similar to the HRQoL of healthy siblings, with the exception of lower ... HRQoL of children with SCD While interpreting the results of this study, strengths and limitations should be taken into account Findings of this study are strengthened by the use of a well-standardized...

Ngày tải lên: 20/06/2014, 15:20

... further study of their possible weaknesses and strengths Therefore, the specific aims of this study are to: i) assess the properties of WHOQOL-BREF in SCD; and ii) compare the properties of the ... groups experiencing different frequencies of painful crises Pain is a major indicator of health- seeking and hospitalization in these patients [38,39,42-45], and those with frequent painful crises ... values of 70 and over were deemed acceptable [37] The floor and ceiling effects were measured for the scales and their domains with floor effect being the percentage of subjects with the lowest...

Ngày tải lên: 20/06/2014, 16:20

... (GFR) These parameters decrease with age as well as with administration of prostaglandin inhibitors Proteinuria, a common finding in adults with SCD, may progress to the nephrotic syndrome Proteinuria, ... effacement in approximately 10 glomeruli Immunofluorescence staining was negative for immunoglobulin G (IgG), IgA, IgM, C1q, C3, fibrin, albumin and  and l chains A diagnosis of CG was considered and ... stain to highlight the basement membranes of glomerular capillary loops and tubular epithelium The capillary loops of this normal glomerulus are well defined and thin Ramidi et al Journal of...

Ngày tải lên: 11/08/2014, 00:22

... lipids, resulting in changes in fluidity of the bilayer Additionally, there is increased ion permeability, inactivation of membrane enzymes and receptors, and covalent cross-linking of lipid Once ... transfer of electrons between Fe and O2, leading to the production of O2– Auto-oxidation of hemoglobin, which occurs to a small extent physiologically, leads to the production of methemoglobin and ... oxidant/antioxidant profile of SCD patients at baseline and during VOCs, including ACS, and to examine the clinical effect of pharmacologic intervention to reduce oxidant production in SCD This will...

Ngày tải lên: 12/08/2014, 18:20

... collaboration using the models of consultation and liaison services among psychiatrists and other health care professionals in managing children and adolescents with SCD Treating psychotic symptoms in this ... duration being longer than the first episode The acute and transient nature of psychotic symptoms in this adolescent would point to a fleeting precipitating factor Conclusion Considering the diagnostic ... his insurance work required frequent traveling O.J and his siblings spent most part of their time with the house-help and their stepmother None of the patient's siblings suffered from SCD, but the...

Ngày tải lên: 13/08/2014, 18:21