Listening and Acting on Native Priorities for Cancer Prevention American Indian Research Center for Health Conference August 15-16, 2013 Dr Octaviana V Trujillo Heather L Eastman Partnership for Native American Cancer Prevention (NACP) Northern Arizona University Navajo Cancer Incidence Colorectal (18.2 cases per 100,000), stomach (14.2), kidney (14.1), pancreatic (8.1) and liver (8.1)cancers are the most commonly diagnosed among the Navajo population Men have higher rates of stomach and liver cancer, and lower rates of prostate, colorectal, lung cancer and lymphoma than other populations in Arizona and New Mexico Women have higher rates of stomach cancer, but lower rates of breast and colorectal than other populations in Arizona and New Mexico (Navajo Division of Health and Navajo Epidemiology Center, 2011) www.destination360.com/northamerica/us/arizona/map-of-navajo-nation Hopi Cancer Incidence The most common cancers in the Hopi community are breast and prostate 59% of all invasive cancers for Hopi are in men 43% of cancers in the Hopi Nation were found after spreading to other sites in the body (Hopi Department of Health Services and Arizona Cancer Center, 1996 in Native Cancer Research Corporation, 2011) www.nativevillages.org The Partnership for Native American Cancer Prevention Tohono O'odham Cancer Incidence Florence Community Breast (11% of all cases), corpus uterus (8%), unknown and ill defined sites (7%), prostate (7%) and colorectal (6%) cancers are the top types of cancer for the TO community (TONCCC, pg 18-19) Kidney cancer is the most prevalent form for the TO Nation, while it is 9th in Arizona overall (TONCCC, pg 18) For men, prostate cancer is the most common at 28% of all male incidences (TONCCC, pg 20) For women, breast cancer is the most common, with 21% of all female TO cancers (TONCCC pg 21) In June, 2010, the CDC Funded TON Comprehensive Cancer Prevention and Control Plan was passed by TON Tribal Council The TON CCC is only of Tribal CCC Plans in the US 2005-10, The CCC Plan for the Alaska Tribal Health System , 2007-12, Fondulac Band of Lake Superior Chippewa Wiidookaage Cancer Plan and the 2008-12, Northern Plains Native American Cancer Plan Community Based Research Community based participatory research at NACP How we obtain community input about cancer priorities? Sanderson & Brown "Cancer risk factors and screening behaviors of the Hopi tribe" (Brown et al., 2011) Consistent Community Priorities from 2003-2013 HOPI Navajo Tohono O’odham General Develop a Men’s Night Out” program Develop a support group for cancer in Flagstaff Develop cancer education about healthy lifestyles and traditional foods More discussion of traditional medicine and healers Educate about cancer education and awareness on Hopi Radio Support a Cancer 101 Conference for Navajo/Flagstaff Community Involve traditional medicine healers in cancer education and prevention Cultural competent information and training for people in the health field Provide female specific cancer education Develop cancer prevention curriculum for children Increase men’s and women’s awareness and screening rates for gender specific cancers Involve the community and tribal leaders in all aspects of cancer education and prevention Recent Priorities Hopi Advisory Board Input from the 2013 NACP Gathering Survey Responses from the Chinle, Az Cancer 101 Conference Education for small children Discussion of traditional medicine Need to reach the 21-30 age demographic Tribally and Native specific cancer information Education for both mothers and daughters about Human Papillomavirus ( HPV) and early prevention More cancer prevention conferences Emphasize healthy lifestyles and activities More male centered information and participation by men in activities More information on women's health and types of cancer Positive testimonies and focus How is NACP Outreach Addressing Community Priorities? HOPI Conducting “men’s night out” events that include food, storytelling, male leadership, and a comfortable environment to learn about male catered cancer education Navajo Tohono O’odham General Adolescent HPV: Epidemiology & Prevention, June 2009 AZCC Physician’ to present on Colorectal and Testicular Cancer for the Men’s Wellness Day Working on training health care professionals and researchers to be the most effective and culturally aware as possible Lynch Syndrome & Renal Cancer Chinle, May 2010 Colorectal Cancer, Window Rock, June, 2011 and St Michaels, February 2012 NACP Cancer Support Group Kickoff on August , 2013 Traditional Healer at the Annual TON Cancer Summit: emphasizing traditional treatments for breast care , tumors and growths; teachings regarding the indigenous understanding of cancer TON Rodeo & Fair: Tough Enough To Wear Pink Breast Cancer Awareness Campaign Broadcasting information about cancer and cancer prevention on KUYI 88.1 Cancer 101 conference conducted in Chinle July, 2012 Facilitating Cohorts of TUSD #40 /Baboquivari School District Parents/Teachers to receive training as UA/COPH Public Health 101 Advocates Developing cultural competence training for those involved in the health fields Increasing awareness of cancer and screening options for women of all ages Developed cancer education curriculum for K-12 Provided funding for 23 staff from TOCC, TODHHS and TAIHS to acquire CME certification for the UA/COPH Basic Tobacco Intervention Skills for Native Communities Training lay health workers on how to conduct cancer education and prevention programs, involving indigenous community members/liaisons What are some meaningful activities for cancer prevention that would useful in your community?