15th-annual-pediatric-bioethics-conference-speaker-biographies

Krysta Barton, PhD, MPH Dr Krysta Barton is a clinical research scientist in the Treuman Katz Center for Pediatric Bioethics and the lead qualitative investigator within the Palliative Care and Resilience (PCAR) Research program She is an experienced interdisciplinary research professional, skilled in qualitative research design, implementation and analysis, and has a doctoral degree in public health genetics from the University of Washington as well as an MPH in health education and behavioral science from Rutgers University She is a member of the Ethics Committee at Seattle Children’s Hospital Emily Berkman, MD, MA Dr Emily Berkman is a physician and bioethicist who is board-certified in pediatrics and pediatric critical care medicine She also completed a fellowship in pediatric bioethics at the Treuman Katz Center, and received a master’s degree in bioethics from the University of Washington In addition to her clinical duties, she is a member of the Ethics Committee and serves as an organizational ethics consultant for Seattle Children’s Hospital Douglas S Diekema, MD, MPH Dr Douglas S Diekema is the director of education at the Treuman Katz Center for Pediatric Bioethics He is a professor in the Division of Bioethics and Palliative Care, Department of Pediatrics at the University of Washington School of Medicine, and an adjunct professor in the Departments of Bioethics & Humanities and Internal Medicine, as well as in the Department of Health Services in the School of Public Health He is also an attending physician in the Emergency Department at Seattle Children’s He has been a member of the Seattle Children’s Hospital Ethics Committee since 1991, has served as an ethics consultant since 1993 and is chairperson of the Institutional Review Board (IRB) He is the former chair of the Committee on Bioethics of the American Academy of Pediatrics, and continues to serve on that committee as a liaison from the American Board of Pediatrics He currently serves on the board of directors of the American Society of Bioethics and Humanities He was honored by the American Academy of Pediatrics as the 2014 recipient of the William G Bartholomew Award for Ethical Excellence Diekema is the author of numerous scholarly publications on medical ethics and pediatric emergency medicine He is the editor of Clinical Ethics in Pediatrics: A Case-Based Textbook, published by Cambridge University Press Norman Fost, MD, MPH Dr Norman Fost is a graduate of Princeton (AB 1960), Yale (MD 1964) and Harvard (MPH 1973) He completed residency training in pediatrics and two years as chief resident at the Johns Hopkins Hospital He was a fellow in the Harvard Program in Law, Medicine and Ethics in 1972–73 Since 1973 he has been at the University of Wisconsin, where he worked as a general pediatrician for 40 years and is now professor emeritus of pediatrics and bioethics He founded the Program in Medical Ethics in 1973; was chair of the Hospital Ethics Committee for 31 years, and chair of the Health Sciences IRB for 31 years; was director of the Pediatric Residency Training Program for 21 years; was founder and director of the Child Protection Program for 33 years; and was vice chair of the Department of Pediatrics and the Department of Medical History and Bioethics for 10 years He was an elected member of the Princeton University Board of Trustees (1994– 1998) and in 1996–97 was the DeCamp Visiting Professor of Bioethics at Princeton He served on the Ethics Working Group of President Clinton’s Health Care Task Force and in 2003 he received the William G Bartholomew Award from the American Academy of Pediatrics for Excellence in Ethics In 2004 he was awarded the Nellie Westermann Prize for Research Ethics, and was runner-up in 1976 and 1989 In 2006 he received a lifetime achievement award, created by the U.S DHHS Office of Human Research Protection, for excellence in human research protection In 2007 he was the first recipient of the Patricia Price Browne Award in Bioethics from the Oklahoma University Medical School In 2011 he was inducted into the Johns Hopkins University Society of Scholars, and in 2016 he received the MacLean Prize, the largest prize in bioethics He has published numerous articles on a range of issues in medical ethics, including human subjects research, genetic screening, performance enhancing drugs, euthanasia of handicapped newborns, organ transplantation and access to human growth hormone He has taught courses on ethical and regulatory issues in human subjects research at the Food and Drug Administration (FDA), and for 20 years has taught a similar course at the Johns Hopkins Medical Institutions He has served on numerous federal committees and commissions on a variety of ethical and regulatory issues He is past-chair of the FDA Pediatric Ethics Subcommittee, and served on the National Academy of Science Committee on Guidelines for Stem Cell Research Fost has been a frequent guest on national television shows, including Nightline, Frontline, Crossfire, Donahue, The News Hour, Good Morning America, 20/20, ESPN SportsCenter, HBO, Charlie Rose, Larry King Live and Oprah He appears in the movie Bigger, Stronger, Faster, and was a consultant for the 2018 Oscar documentary winner, Icarus Lainie Friedman Ross, MD, PhD Dr Lainie Friedman Ross is the Carolyn and Matthew Bucksbaum Professor of Clinical Medical Ethics; a professor in the Departments of Pediatrics, Medicine, Surgery and the College; the associate director of the MacLean Center for Clinical Medical Ethics; and co-director of the Institute for Translational Medicine, all at the University of Chicago Ross has published two books on pediatric ethics: Children, Families and Health Care Decision Making (Oxford University Press, 1998) and Children in Medical Research: Access Versus Protection (Oxford University Press, 2006), and has co-authored two books with Robert M Veatch (Transplantation Ethics, 2nd edition, Georgetown University Press, 2015; and Defining Death: The Case for Choice, Georgetown University Press, 2016) She has also published over 200 articles in peer-reviewed journals in the areas of pediatric ethics; transplantation ethics; research ethics; and genetics and ethics She earned her AB from the Woodrow Wilson School of Public and International Affairs at Princeton University (1982); an MD from the University of Pennsylvania School of Medicine (1986) and a PhD in philosophy from Yale University (1996) She did her pediatric residency at the Children’s Hospital of Philadelphia (1986–1988) and at Columbia University (1988–1989) She was a 2014 recipient of a John Simon Guggenheim Memorial Foundation Fellowship and the 2015 recipient of the William Bartholomew Award in Ethical Excellence from the American Academy of Pediatrics She currently serves as the chair of the NIH study section of Societal and Ethical Issues in Research (SEIR), and is a member of the external expert panel (EEP) of the NIH APOL1 Long-Term Kidney Transplantation Outcomes Network (APOLLO) Aviva Goldberg, MD, MA, FRCPC Dr Aviva M Goldberg is a pediatric transplant nephrologist, section head of pediatric nephrology and associate dean for UGME student affairs at Max Rady College of Medicine at the University of Manitoba in Winnipeg, Canada She is a board member of the Canadian Society of Transplantation and founded its ethics committee She also serves/has served on the ethics committees of the International Pediatric Transplant Association, American Society of Pediatric Nephrology, Canadian Blood Services and the Royal College of Physicians and Surgeons of Canada Goldberg holds a master's degree in bioethics and health policy from Loyola University Chicago and a fellowship in bioethics and medical humanities from Northwestern University She has published and lectured widely on the topics of transplant ethics and pediatric ethics and is co-editor of the book Ethical Issues in Pediatric Organ Transplantation, published by Springer Jennifer Kett, MD, MA Dr Jennifer Kett is a physician and bioethicist who is board-certified in neonatology as well as hospice and palliative medicine In addition to neonatology and palliative medicine fellowships, she also completed a fellowship in pediatric bioethics at the Treuman Katz Center, and received a master’s degree in bioethics from the University of Washington Kett is currently practicing as a pediatric palliative care physician at Mary Bridge Children’s Hospital in Tacoma, Washington She is co-chair of the Ethics Committee for Mary Bridge and Tacoma General Hospitals Jenny Kingsley, MD Dr Jenny Kingsley is a current pediatric critical care fellow at Seattle Children’s Hospital and pediatric bioethics fellow at the Treuman Katz Center She is also currently enrolled in the University of Washington, where she is working towards a master’s degree in bioethics Mary Faith Marshall, PhD, HEC-C, FCCM Dr Mary Faith Marshall is the Emily Davie and Joseph S Kornfeld Professor of Biomedical Ethics; director of the Center for Biomedical Ethics and Humanities; and director of the Program in Biomedical Ethics at the University of Virginia School of Medicine With her colleagues Lois Shepherd and Julia Taylor, she co-founded its program Studies in Reproductive Ethics and Justice She is a professor of public health sciences in the School of Medicine, and a professor in the Schools of Nursing and Law (University Faculty) She co-chairs the UVA Health System Ethics Committee and directs its Ethics Consult Service Her expertise includes reproductive, clinical and research ethics She is past president of the American Society for Bioethics and Humanities (ASBH) and the American Association for Bioethics She served on the ASBH Health Care Ethics Certification Task Force from 2016–2017 and is a member of the inaugural class of healthcare ethics consultants to be certified by the ASBH (2019) She is an elected fellow of the American College of Critical Care Medicine, where she is vicechair and forthcoming chair of the SCCM Ethics Committee In 2017 and 2019 she received SCCM Presidential Citations for Outstanding Contributions to the Society of Critical Care Medicine Marshall received the Trailblazer Award from the NAACP (Charleston Chapter) in 1999 for her work in policy approaches to perinatal substance use disorder, and has testified on this subject before Congress and in U.S district court She was a member of the American College of Obstetricians and Gynecologists Committee on Ethics for 11 years, and is the primary author of its Opinion #664, Refusal of Medically Recommended Treatment During Pregnancy She is a member of the editorial board of the American Journal of Bioethics Marshall has served on a number of National Institutes of Health boards, including the NIAID Division of Aids Prevention Africa DSMB and its International DSMB for Africa She chaired the first NIH review panel on global health research involving human subjects She also chaired the National Human Research Subjects Protections Advisory Committee at the U.S Department of Health and Human Services, and has been a special consultant to the DHHS secretary on research related to children and prisoners She was an expert advisor on the Committee on Assessing the System for Protecting Human Research at the Institute of Medicine Marshall received her BA, BSN and PhD from the University of Virginia, where she was the Paddock Graduate Fellow in Biomedical Ethics She was a critical care nurse at UVA for 11 years Her research interests include moral distress, coercive interventions in pregnancy, policy approaches to perinatal substance use disorder, clinical ethics, human subjects protections and research ethics Marshall is former associate dean of social medicine and professor of family medicine and community health at the University of Minnesota (UMN) Medical School, and co-director of the UMN Center for Bioethics in the Academic Health Center Kim Sawyer, MD Dr Kim Sawyer is a palliative care pediatrician and ethicist-in-training She completed her pediatrics residency and palliative and hospice medicine fellowship at Baylor College of Medicine She is currently a pediatric bioethics fellow at the Treuman Katz Center, and is working toward an MA in bioethics and humanities at the University of Washington She practices pediatric palliative care at Seattle Children’s Hospital, where she is also an ethics consultant and member of the Ethics Committee Maya Scott, MSW, LSWAIC Maya Scott is a clinical social worker and palliative care consultant currently practicing at Seattle Children's Hospital She also provides support to individuals and families as a grief therapist through the Journey Program at Seattle Children's With Journey, her focus is on providing culturally responsive outreach and therapeutic care Scott previously worked in the community as a case manager serving medically fragile foster youth seeking permanency and adoptive placements, and at Seattle Children’s in the rehabilitation setting She earned her bachelor's in American Studies at the University of Hawaii at Manoa and later her master's in social work from the University of Washington, with a focus on medical social work She was a Carole Lamar Scholar and completed additional training in palliative care and oncology Robert Truog, MD Dr Robert Truog is the Frances Glessner Lee Professor of Medical Ethics, Anaesthesiology and Pediatrics and director of the Center for Bioethics at Harvard Medical School He also practices pediatric intensive care medicine at Boston Children’s Hospital, where he has served for more than 30 years, including a decade as chief of the Division of Critical Care Medicine Truog received his medical degree from the University of California, Los Angeles, and is board certified in the practices of pediatrics, anesthesiology and pediatric critical care medicine He also holds a master’s degree in Philosophy from Brown University Truog has published more than 300 articles in bioethics and related disciplines His books include Talking With Patients and Families About Medical Error: A Guide for Education and Practice (2010, JHUP, translated into Italian and Japanese), and Death, Dying and Organ Transplantation (2012, Oxford) He has received several awards over the years, including the William G Bartholome Award from the American Academy of Pediatrics and the Christopher Grenvik Memorial Award and the Shubin-Weil Master Clinician-Teacher Award, both from the Society of Critical Care Medicine In 2013 he was honored with the Spinoza Chair at the University of Amsterdam Elliott M Weiss, MD, MSME Dr Elliott M Weiss is an assistant professor in the Division of Neonatology at the University of Washington and faculty at the Treuman Katz Center for Pediatric Bioethics at Seattle Children’s Hospital He attends in the neonatal intensive care unit and on the ethics consult service He completed fellowships in neonatology and advanced biomedical ethics at the University of Pennsylvania, where he also received a master of science in medical ethics His areas of research include parental decision-making and communication; informed consent; neonatal clinical research enrollment; and ethics at the limits of viability Lois Weithorn, PhD, JD Dr Lois A Weithorn is a professor of law and the Harry and Lillian Hastings Research Chair at the University of California’s Hastings College of the Law She received her JD from Stanford Law School, where she served as president of the Stanford Law Review After graduating, she clerked for the Honorable Joseph T Sneed III of the U.S Court of Appeals for the Ninth Circuit Weithorn also has a PhD in Psychology (University of Pittsburgh) Prior to joining the faculty at UC Hastings, she held positions at the University of Virginia (Institute of Law, Psychiatry and Public Policy and Department of Psychology) and served as a fellow at Stanford’s Center for Advanced Study in the Behavioral Sciences Weithorn’s work integrates perspectives in law and the behavioral and health sciences, with special emphasis on legal policies affecting family relationships or vulnerable groups such as children and persons with mental disorders Her scholarship includes topics such as informed consent, healthcare decision-making capacity and children’s participation in treatment decisions; legal responses to parental vaccine refusal; policies affecting youth crossing child welfare, juvenile justice and/or mental health system boundaries; developmental neuroscience and child protection policy reform; and legal responses to children’s exposure to domestic violence Aaron Wightman, MD, MA Dr Aaron Wightman is a pediatric nephrologist and bioethicist at the University of Washington School of Medicine, Seattle Children’s Hospital and the Treuman Katz Center for Pediatric Bioethics His research interests focus on medical decisionmaking for children with complex, chronic medical conditions Dominic Wilkinson, MB BS, DPhil Dr Dominic Wilkinson is director of medical ethics and professor of medical ethics at the Oxford Uehiro Centre for Practical Ethics, University of Oxford He is a consultant in newborn intensive care at the John Radcliffe Hospital, Oxford He also holds a health practitioner research fellowship with the Wellcome Trust and is a senior research fellow at Jesus College, Oxford Wilkinson has published more than 130 academic articles relating to ethical issues in intensive care for adults, children and newborn infants He is co-author (with Julian Savulescu) of Ethics, Conflict and Medical Treatment for Children, From Disagreement to Dissensus (Elsevier, 2018) He is also the author of Death or Disability? The ‘Carmentis Machine’ and Decision-Making for Critically Ill Children (Oxford University Press, 2013) (“the best book of the decade in bioethics this is a book that must be read by everybody who is seriously interested in the bioethical issues that arise in neonatal intensive care or, more generally, in decision making for children with chronic, debilitating or life-threatening conditions.” [John Lantos, Notre Dame Philosophical Reviews]) He was editor and associate editor of the Journal of Medical Ethics from 2011-2018 He is on Twitter at @Neonatalethics