The Ethics and Governance of Human Genetic Databases European Perspectives Part 9 potx

... respect the views of the many rather than the views of the few. The point of social studies is, within this model, to inform the authorities of the direction of the majority opinion. The second ... large-scale human genetic databases? And secondly, in the light of the research of the legal team, 3 how well have the authorities of Estonia, Icela...

Ngày tải lên: 05/08/2014, 13:20

... descriptions of DNA. 30 Explanatory Report to the Convention for the Protection of Human Rights and Dignity of the Human Being with Regard to the Application of Biology and Medicine: Convention on Human ... Rights and Biomedicine, unclassified CM (96 ) 175 final (Strasbourg: Council of Europe, Committee of Ministers, 199 7). 31 Convention on the Protection...

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... original hypothesis was that there must be a clear distinction between the American and European approaches to the ethics of human genetic 1 The expressions human genetic databanking’ and genetic ... of data for research at the time of collection. This creates a particular challenge for the ethics of database research. Introduction: some lessons of ELSAGE...

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... an Information Age: The Problem of Privacy in Public’, Law and Philosophy 17 ( 199 8), pp. 5 59 596 . 6 This happened in 199 5. The languages of privacy 39 Subsidiarity The idea of attaining essential ... followed the US tradition, have implemented the Directive of the European Parliament and the Council of Europe on the protection of individuals with regar...

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... under- standing of people’s perceptions of privacy and their trust in the guard- ians of biobanks and the institutions setting them up and regulating them. The UK team felt that the findings of this ... picture of the nation. The response rate was 68%. Males accounted for 49. 9% of respondents and females 50.1%: the distribution of the sample is very repr...

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... Convention on the Protection of Human Rights and Dignity of the Human Being with Regard to the Application of Biology and Medicine: Convention on Human Rights and Biomedicine, Oviedo, 4 April 199 7, ETS ... Icelandic Parliament. 7 Council Directive 95 /46/EC of 24 October 199 5 on the protection of individuals with regard to the processing of personal data...

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... Directive 95 /46/EC of 24 October 199 5 on the protection of individuals with regard to the processing of personal data and on the free movement of such data, OJ 199 5 No. L281, 23 November 199 5, art. ... 197 6, 99 3 UNTS 3, ( 197 6) 6 ILM 360. 3 UNESCO, The Universal Declaration on the Human Genome and Human Rights, adopted by the General Conference of UNESCO...

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... it is the best use of money), governance of the project, aims of the project, scientific value of the project (reliability of the data) and the perception of the public. 194 Margit Sutrop not ... regardless of the gendered consequences which may flow from them’. 12 Council Directive 97 /80/EC of 15 December 199 7 on the burden of proof in cases of d...

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... Macmillan, 195 9 [1875]), 47/4 29. 29 Ibid. 30 See O’Neill, Autonomy and Trust, pp. 86– 89, 97 . Informed consent and human genetic database research 211 background knowledge can limit understanding of the ... not only the Human Genome Project, but also population-based human genetic databases. One of the main justifications for human genetic databases is i...

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... 188, 190 – 191 alternative and complementary concerns 251–252 concept of 191 – 193 in context of human genetic databases 194 – 195 Estonia 50, 51, 52, 195 , 196 , 252 Iceland 55, 58, 1 89, 195 , 196 , 252 kind ... (2002), 325–3 39 272 Bibliography Council Directive 97 /80/EC of 15 December 199 7 on the burden of proof in cases of discrimination based on sex, OJ 199 8...

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