... towards genetic research 54 55 Health Sector Database (HSD) 53 , 57 , 251 method of study 54 personal information rights 57 privacy rights 56 57 trust 55 , 58 methodology of study 54 , 59 –60, 255 – 256 regulation ... attitudes and awareness 20, 45 46Estonia 46, 47–49, 51 , 250 Estonian Genome Project 49 52 trust 50 , 51 , 52 , 1 95, 196, 252 Iceland 45, 57 58 , 250 access to information 55 , 57 consent 56 , 58 280 ... databases 194–1 95 Estonia 50 , 51 , 52 , 1 95, 196, 252 Iceland 55 , 58 , 189, 1 95, 196, 252 kind of trust needed 1 95 198as main concern 250 – 251 Sweden 62, 63, 64United Kingdom 67, 69, 70–71, 1 95, 196, 252 Tsui,...