... communi-cation with health care professionals. This can providethese children with the additional care they need due totheir double disadvan tage: a chronic disease, on top of an unfavourable background.Declaration ... Self-Perception, Autonomy, ParentRelation, Financial Resources, and Bullying . Healthy sib-lings had significantly lower mean scores on 3 of thesedomains: Autonomy, Parent Relation, and FinancialResources.HRQoL ... known.Quality of Life (QoL) is defined as an individual’ sper-ception of one’s position in li fe in the context of cultureand value systems, as well as in relation to one’sgoals,expectat ions, standards...